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Does anyone care for a spouse and look after a young family?

Wifeofcancerfighter
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Hi all

I'm really struggling and don't really know where to turn. My husband who is 29 was diagnosed with Acute Lymphoblastic Leukaemia in July 2016, just 10 weeks after our little girl was born in May.

 

He went through phase one and two chemotherapy and went into remission in Oct/Nov however they found he has some rare mutation cells which meant that he needed to have a bone marrow transplant. We took the decision that this is the route he should take and in Feb this year the transplant took place. It went well and had a few complications but he seemed to be recovering well. However, we received the devastating news a couple of weeks ago that it looks like he might have relapsed.

 

People say to me that I do incredibly well caring for my husband and our little girl who is just over one now. But it just feels so difficult not knowing what is going to happen next and I'm so scared for the future. Whenever he gets admitted into hospital our little girl is massively effected as she is so confused as to where Daddy is. It can be so emotionally draining sometimes because I feel like a single parent caring for a adult and a child. It's so hard seeing him so poorly sometimes as well because he was so fit and active.

 

I was wondering if there is anyone else in a similar situation to me? We have friends and family but it's hard as I feel so isolated sometimes as I know everyone has to carry on with there lives, it's just we are living with it everyday and my mind can never be free from it as the cancer is always in our thoughts.

 

Thanks everyone

 

Fiona

 

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    hey Fiona i'm not in the same situation but i help my parents take care of my sister who has advanced bowel cancer i can tell you it takes a toll even when there are 3 of you i feel isolated with my aging parents as if on an island. the future is what scares me most the doctors said for my sis it is just a matter of how long she will last every time she gets worse we think this is it but so far she bounced back.

    hang in there and come here to chat it helps to be among those that understand.

    Sandy xx

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    Good evening, yes I'm in a very similar situation to yourself, as my soon to "husband" whose on,y 43 yrs old, and we've two boys age 9 & 8. We got,diagnosed march this year with stage 4 stomach cancer, he's currently half way throu 6 cycyles of palliative chemo. It certainly seems to have made a huge difference to him, he can finally eat after virtually being starved to death and living on soups and ensures. The tumour therefore shrinking. We have a T scan in the next few weeks, before his next cycle of chemo.....were very scared of that, but trying to put it to the back of our minds for now. Hope your well in yourself, Vivienne xxxx

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