Matzuva,

I can only imagine how angry, frustrated and scared you are at this time. Having little to no support from the medical proffesionals is added burden of pain and despair. I am sorry you are struggling!

Please remember, you are desperately trying to do your very, very best for your husband. Keep touching him gently, talking calmly, reminding him off good times and that you will be there for him no matter what.

You are not alone. I feel so desperate and scared sometimes being a caregiver to my mom who is dying. I do my best each day. That is all I can do. It is ok to cry, scream or just be sad.

Please reach out to a friend and allow them to help you!! Ask them to visit you, prepare a meal, bring youclean clothers to the hospital, walk your dog, keep your kids,  whatever. Give them a task and they are happy to help! people just dont know WHAT to say or HOW to help. You are cared for more than you know.

Take a walk in the sunshine. Try to see and share one moment of joy or beauty with your husband. 

You will get thru this! God bless you both!

Nurse from Boston