4 years on still trying to cope

 Hi every one, my name is Billy. My partner of 17 years was digagnosed with adanoid systic carsanoma of the nasal septum 4 years ago. She underwent 3 ooperations and 3 months of intensive radiation therapy to the head. Thankfully got clear on the last one but was left with no smell, taste and horrendous tinnitus as well as looking completely different through the operations to her face. Prognosis for long term survival is poor and this tends to recour either in the primary site or major organs. it's fair to say our whole world got turned up side down. At one point they wanted to take off her whole nose and give her a prosthetic. Although that didn't have to happen in the end, the trauma and stress of the whole process has left it us both scarred. I should be happy and thankful, which I am in many respects but I am still trying to come to terms with everything. We had lots of friends rally round at the time but once in the clear that soon stopped. It has changed her and me massively and our lives and relationship. I've carried on trying to do my best to support her and do the best I can to make things ok again but as time has gone on I feel alone and isolated as now one one really wants to talk  about it with me. Because she survived every one just says how lucky we are. They are not there to understand and deal with the fallout. I think I've just gotten to the point where I realise I'm not coping so anymore on my own and could do with taking to other people who might have a better understanding of what I'm going through. Any and all comments or conversion would be very welcome. 

  • Hi Billy

    One thing i have always found is that actually speaking about cancer seems like the hardest thing.

    My grandfather had prostate cancer and my mother has just been diagnosed with lung cancer but i just cant bring myself to actually talk about it, if i see my mum i just bottle it and act like everythings normal. I did the same with my grandfather. Part of me also thinks would i upset her.

    Maybe people feel that bringing it up would be upsetting to you? Its very much treading on eggshells all the time.

    Thank you for listening xx

  • Hi billy my heart goes out to you,I know exactly how your feeling, I have had my husband with nasal pharegene cancer,head and neck, it's horrendous ,he had radiotherapy and chemotherapy,plus several operations,it's been 4 years now, it's totally wrecked the man I married, it destroys you to, it's one of the hardest things I have ever had to go through, you feel so lonely,you do your best ,that's all you can do, I have felt like running away and never coming back,but know i would never do that , you are the same as me 4 years,it's so hard to cope with it all ,but you find the strength some how, I'm a good listener if you ever want to chat thanks sue .