Hi every one, my name is Billy. My partner of 17 years was digagnosed with adanoid systic carsanoma of the nasal septum 4 years ago. She underwent 3 ooperations and 3 months of intensive radiation therapy to the head. Thankfully got clear on the last one but was left with no smell, taste and horrendous tinnitus as well as looking completely different through the operations to her face. Prognosis for long term survival is poor and this tends to recour either in the primary site or major organs. it's fair to say our whole world got turned up side down. At one point they wanted to take off her whole nose and give her a prosthetic. Although that didn't have to happen in the end, the trauma and stress of the whole process has left it us both scarred. I should be happy and thankful, which I am in many respects but I am still trying to come to terms with everything. We had lots of friends rally round at the time but once in the clear that soon stopped. It has changed her and me massively and our lives and relationship. I've carried on trying to do my best to support her and do the best I can to make things ok again but as time has gone on I feel alone and isolated as now one one really wants to talk about it with me. Because she survived every one just says how lucky we are. They are not there to understand and deal with the fallout. I think I've just gotten to the point where I realise I'm not coping so anymore on my own and could do with taking to other people who might have a better understanding of what I'm going through. Any and all comments or conversion would be very welcome.