My dad has prostate cancer

my dad was diagnosed with stage 4 prostate cancer in September.  Since then, my sister and I have been going down to care for him every day (he lives alone).  He is currently in hospital with a chest infection due to be discharged at the end of the week.

i love my dad so much, and I really don't mind going down to care for him when my kids are at school but Im starting to struggle when they are off school and at the weekend.  I have 3 kids (19, 12 & 9), the 9 year old is my foster child, that's my job a foster carer.

my dad is starting to struggle a bit at home, he is reluctant to get carers in (I had arranged for carers when he was first diagnosed, but he told them not to come back), he is probably going to need a commode and I will REALLY struggle with this. 

its the Easter holidays and so far I've done absolutely nothing with the kids, it was the same during the October break, Christmas break and any inservice days, because I'm down at my dads everyday.  Don't get me wrong, my sister is down everyday too (she goes down first thing in the morning and in the evening as she works 9-5) but she expects me just to leave the kids and go down everyday.  My husband works from 7am - 5pm, but is up at 5.30 in the morning and doesn't get home until about 6pm at night. I need to ask my oldest son to look after the younger 2 when they are off school whilst I go down to my dads therefore he can't go out with his friends, the younger 2 are missing out on trips etc, and I've already had social services ask me if I can still do my job (foster child has been with us for 3 years, calls me mum and is a permenant placement) and I've been pulled up because I'm not up to date with my training. 

I have spoken to my sister to say I will struggle cleaning the commode, she told me I will just need to get over it, I've told her we might need to put our heads together to come up with a plan if we struggle to keep caring for him, she's told me he isn't going into a home (please believe me I don't want him to go into a residential home either but I think we need to keep an open mind), she expects me to go down every day to see/help my dad because I'm at home everyday and she's doing way more because she has a 9-5 job. I understand she is doing all she can.

i don't know how much longer I can keep juggling things and I've tried to explain this to her but she just keeps saying "we will still have our lives when he's gone, we won't have him", and she gets really annoyed and acts like I don't care about him. I'm worried in case foster child is taken away from me which would break my heart as I love her like my own, I'm worried I case I can't look after my dad, I'm worried that the kids are having a rotten time (their Easter holidays have been rubbish). My house is a pigsty it hasn't been cleaned properly for months which then makes me worried a I could get an unannounced visit from social services or the care commission at any time. My husband is knackered when he gets home, he does his best to help and hasn't said anything about me going down to my dads until recently when he has said we (meaning my sister and i) should really be looking into further care for him as we cant keep this level of care up just by ourselves.  My mum is also saying if dad doesn't want the help then he isn't getting it (mum and dad are separated but mum doesn't keep well herself and cannot give any care to dad).

im so sorry for anyone who reads this that this has turned out to be a novel, and I'm sorry if it sounds so selfish. I promise it's not meant to be I'm just worried about everything.  I want to please my dad, my sister, my husband, my kids, social services and I don't know how I can do all of that and keep juggling everything.

  • Hi Ok, you and your sister have taken a lot on, it is obvious that it is getting to you, first you need to contact the McMillan nurses explain the situation, regardless of what your sister says,. Is your dad expecting you both all the time ? maybe that is why he has declined a career knowing you both will look after him. May be harsh words but you need a break a few days a week without feeling guilty, the nurses handle situations like this all the time and will give advice accordingly. You must have a break, I bet even your sister thinks this, it's great that your helping your dad, but if anything happens you or your sister are not trained to cope, the camode I can understand your reluctance to deal with, not a nice job. I say all this as I am a stage 4 PC victim of this dreadful desease, it's great having family around but embarrassing at some things you do. Phone the nurses their good people to talk to then discuss it with your sister ask your dad what he thinks he has a say to. The very best of luck take care. Joe
  • Thank your replying Joe.

    i will contact the McMillan nurses today just to get an idea of the help we can get but I did message my sister this morning to say about them and she said if dad doesn't want them in, then they aren't going in?            

    Even if the nurses/carers did go in, my sister would still go in the morning to see him, and go and sit with him after work.  We have had this argument before when I was ill (stomach bug, sickness and diahorrea) and I didn't go down and she wasn't happy, accused me of not caring about him as I should be going down to see him every single day. 

    Ive tried to explain to her this could go on for months, the doctors are saying he could have many months left, but she is saying that's a lot of rubbish, and I'm seriously deluded if I think that.

    i feel I can't win, it's not just her dad he's mine too, but I have young kids to look after who need their mum she thinks I should just leave them to my husband and oldest son to look after.  Even my mum says my foster child shouldn't be classed as a foster child anymore and if she were with her own family, and her grandpa took ill, she would need to be  going with her mum everywhere in order for her mum to look after her ill parent!!!!  I can't just do that with a foster child, I can't just ask anyone to look after her but they just don't seem to get it.

    im so sorry, I'm rabbeting on again, I've not got anyone I can really talk to . 

  • Hi, Saw your post and thought you and your sister should consider a respite nursing home stay, as you are close to burn out mode and you will be of no use to yourself and your family when that happens. Schools will soon be on 6 wks break and you owe yourself a bit of "me" time.
  • All you can do at this moment is sit down, calm down and think everything through. Think of what happens next and prepare for it the best way that you can. For you and your family I feel it is best you spend as much time as you can with your father as he will be scared and very much feeling alone. I can't imagine what that must feel like but it will be better with his family close to your dad. I am wishing that your father is ok and I am also wishing you are ok. I am praying and my thoughts are with you. All the best xoxo.

  • Hi

    Its good that your contacting the nurses, they have the experience, I do not know if your sister has children or there grown up, that's why she has more time for your dad.

    The doctors may well be right your dad could be with us for a long time there are lots of new medications

    out there that can help, is is he on anything ? Or has he had chemotherapy ? Or hormone injections or tablets. 

    My wife's mother died of this dreadful desease many years ago and still feels guilty even though she was there all the time her mother was in the hospice, it's who we are family worry that is our nature,, your sister cannot heap you with guilt,just because your sister does what she does, which is great for your dad, it will tell in time on her.

    Hopefully if you can get the nurses to chat with your dad while you and your sister are there something can be worked out for the better.

    take care try not to stress out relax if you can take a deep breath, it may not get better but it might be easier for you all in the future.

     

     

     

     

  • It's a time to stick together you get a lot of strength from this 

    Wish you well I have a daughter who has just been told she has breast cancer we are all very worried thinking of you good luck