Mum with lung cancer

My mum was diagnosed with untreatable lung cancer on 21 December which seems to have progressed very quickly. She's in hospital at the minute and is awaiting an assessment by the hospital palliative team for a hospice referral.

Mum stopped eating, or having any interest, in food not long after her diagnosis and has lost so much weight there's nothing of her, which is horrible to see. We were told on Saturday that the cancer has developed and she's now starting to get towards the end of her life, and I'm terrified, and really don't know what to expect. My greatest fear is that she will suffer, although she hasn't had any pain so far. None of the doctors who seen her will give a prognosis so I have no idea how long I'll have her for, I just hope I'm there when she needs me and I can give her some comfort 

  • Hi Tracy

    im so sorry to hear about your mum. I wanted to write because I am in a similar situation to yourself. I prob can't offer you any advice or comfort but I suppose I just wanted to tell you that you aren't alone and others like you who can talk to you. 

    My mum was diagnosed with lung cancer before Xmas and although she is still fairly okay (she too has lost weight and is weak) she isn't in bed yet and some days gets out. The doctors haven't committed to any kind of prognosis, we were told it could be days, weeks or months it's so hard living day to day and not knowing when you should say bye etc. I'm finding I worry terribly about the end and if she will be in pain and will it be pro longed etc. I can't bear to see her suffering but feel I will be helpless when the time comes. Just wanted to send you some love and my thoughts anyway 

  • Hi Tracy

    Im Sorry to hear about your mum, My mum passed away 4 weeks ago from metastatic lung cancer ( spread to her brain)

    She stopped eating the right at the end, we had a very short time because she only went into hospital for tests for an irregular blood test and a week with tests she got diagnosed on the 7th of Feb with lung cancer and told her it spread to her brain and that she had 4-6weeks to live and she passed away on the 10th just a few days later. 

    You can't take any days for granted, people day live every day like it's your last and.in this situation do exactly that for her, take photos, make any memories, reminise, and say goodbye i love u everytime because u never know when it will be the last.

    You must be so scared but you can make her feel ready if she see's everyone around her and keep owing she has had a happy life even if it is being cut short x

    Zoe x

  • Firstly big hugs to you and those who have replied..... 

    My mum also has lung cancer, with secondary in the bone of her forearm. Possibly other bones as she is not being honest with me. We live about an hour and a half apart. She's not been able to drive for months so I don't see much of her, as I'm bringing up my daughter, living with my husband (daughter's stepdad) she's at school, etc. We speak regularly but, as I said, she is only giving a teeny bit of information. For a long time she hid that she was seriously unwell from myself and my two brothers. This hurts as I thought we were very close. 

    She is not tolerating the oral chemotherapy so has stopped it. She will not agree to traditional chemo. So what will be prolonging her life? Just the steroids that make her volatile, swollen and completely unlike my Mum? I've reached the crying stage, and can't seem to stop. 

    I'm sorry to leap onto this post but I really needed to connect with other people who understand. X

  • Hiya, sorry to hear about your mum, 

    Medication can be great if its doing the job but can make people really sick with no benefits, it must be really hard seeing her really sick and not like herself but try and be there as much as you can when u can, sometimes people have alot of time but some people (like my mum) didnt have time on her side, every day is precious and cannot go back in time so live everyday to the full as they say. 

    Hashe she got support and help at home? People to help her daily with everything x

    Zoe 

     

  • To all of you lovely ladies, I am in the same boat with you all. My mum has lung cancer and secondary Cancer in her back. She is going downhill fast and I feel so powerless and alone. Reading all of your posts make me realise there are so many of us. I hope we can help one another because I think you only really understand if you are in the boat... Let's row together and try and weather the storms ahead xxx

  • You are not wrong! 

    I couldn't believe how many people can relate sadly to our situation, but it's comforting to know that we are able to talk to people who genuinely know how we are feeling x

    Zoe

  • Again as others have said im sorry to jump on your post,

    My mum has been diagnoised today and i am just numb although i did expect it when she went for tests last week. my main worry is now she has been diaagnoised she will go down hill quick, you hear the saying often she/he was only diagnoised 6 weeks ago... 

  • Hi sorry to hear yout sad news

    Is she able to have treatment ?

  • HI everyone on the feed. Well my heart truly goes out to each and everyone of you. Zoe I too am in the same position as you and your honesty is remarkable. My beautiful mom has sadly passed away on the 8th feb 2017. I was her main carer. Mom was diagnosed in march 2016 and underwent chemo and radio for small cell lung cancer, she did really well with her treatment and seem to fly through it. however we were taken by surprise on January 18th when she was admitted to hospital with a UTI, Forwarding fast an ultra sound found that she had secondary liver cancer, and was sent home 8 days after being admitted, with palliative care. (had two visits after discharge) Moms determination enabled her to eat and drink up to to hours before she died.Even district nurses even thought how well she was doing. What i would like to say to you all is remain positive, even when the outlook looks so glum as this sadness and tears will not change anything. Kiss and hug your mom and tell how much you love her. Ask your mom is there anything that she wants to do?? and do it. Even knowledge of this terrible disease will not prepare any of you, all you can do is just be there, helping her clean, etc.... love to you all xx
  • Hiya

    You couldn't be more right, it's not easy to except someone you love is dying and make the most of any time but that is the best thing to do, dont think weeks and moths ahead, appreciate today and the here and now because as ive learnt tomorrow isn't promised. 

    My mum was diagnosed on the 7th Feb, given 4-6weeks and passed away on the 10th, shocking us all completely, but she did not suffer and for that i will be eternally grateful 

    Zoe