My daughter who is 19 has recently been diagnosed with Neuroendocrine Tumours. This is a very rare form of cancer and is almost unheard of in anyone her age. We have been told that it has spread and therfore palliative care is the only option in regards to treatment. There is no previous evidence as to what to expect next or in the future and i feel lost. I have looked on other forums and not found anything useful. I have amazing friends and family who have been really supportive but we are still waiting on tests to see where it began either the bowel or pancreas as to what is the best form of treatment. we have been told to just take things one day/step at a time which i understand but i feel like i am in limbo unable to make any plans or anything. i have 2 other children aged 14 and 4 aswell so it is just so difficult trying to carry on while everything has been put on hold. I dont know when or if things will ever go back to normal. As this is such an unsual thing even the hospital staff cant really advise us so i just feel so confused.
