A little advice needed

My mum was diagnosed with the vile c word 2 years ago, first breast cancer and then it spread to ger back and ribs and hips. She is amazing and is getting on with life as much as she possibly can. She has been so strong that myself and my whole family have HAD to do the same for her. for 2 years i have had my moments behind close doors but recently i have been finding myself being very emotional and not being able to focus on the positives. I dont want to let her see that i am worried, my husband, family and friends would be there if i wanted to talk to them but i dont feel like i can talk to them about the things i want to with out breaking down. I was wondering if anybody new of any helplines i could try or maybe evan just coming on here if it helps?

She copes by not knowing any negatives, she doesnt ask too many questins and has told her consultant that she doesnt want to know the 'morbid' parts. This is great and works for her but im finding my self wanting to know what everything means - i cant find much info regarding her chemo tablets and i dont know what tumour count means and i feel like i would be more settled if i new a bit more but i dont want to force her to find out anything she doesnt want to as a positive attitude is whats helping her through it im so sure.

I love my mum shes only 56 and has alot more life to live and im petrified of anything happening.

  • Hello my friend

    I'mI'm 49 and like your mum had breast cancer 2013 and now recently have been diagnosed with bone cancer in my hips , spine and a few robs. 

     

    ​​​​​I actually think it's really really hard for relatives.  I think it's harder for them then me! I'm a bit like your mum- just getting on with things and grateful that my pain is well controlled and I can carry on as normal most of the time.

     

    You can perhaps call the Macmillan helpline and talk to someone on the phone or go to there centers in hospitals- if you Google your area. I in fact haven't even told my parents yet - they are elderly, but will do soon. Im going good to give them the link to their local Macmillan Centre so they can go and talk to someone if necessary. 

    Maybe pluck up to your mum you're struggling - she may be putting green on a brave face for your sake and be happy to talk.  I find details that as long as I'm treated as normal I 'm more ten happy to talk about my cancer.

    I did ask my Consultant about my pr- take comfort in that people can live for many years with bone mets.

     

    Your GP may also help & refer you for counselling and to check that you're not depressed.

     

    So sorry that you're going through this. Your mum is lucky to have you. I always think that no one knows how long we have- could get knocked over by a bus and not to waste the time I have with angst and worry - bit it's very natural. You've identified that a little more information would help you and so hopefully the Macmillan people can give you thus. 

     

    Take care and let us know how you get on

    Best wishes

    Connis

  • Thank you for replying and sorry to hear you are suffering with this horrible illness, its the first time iv heard of somebody with such similar tumours as my mum so as awful as it is to say I find it comforting knowing there are other people out there who have been unlucky enough to not catch breast cancer in time for it to be curable and still be fighting fit and ready to go! If your like my mum I know that behind the brave faces you put on there is also a lot of pain which you sometimes cant hide and my advise back to you is take help when its offered as people genuinely want to help especially those that love you the most. Silly things like ironing my mum refuses to give up so I have told my dad to send the next lot off to somebody I found local with out her knowing (we will see how it goes but I think she will be pleased after) My mum said the appointments are not worrying for her, its coming out and having to tell her family if there is some bad news that's the worse part. I have a number sitting on a post it note ready for me to make the call and has been there since 8th March where I thought it was time to make the jump and look into speaking about things and finding out the finer details!! I hope your ok and having a lot more good days than bad!! surround yourself with people and things that you love. Thanks again and best of wishes to you and your family Louise
  • I have gone through a very similar experience, i struggled to let my mum know how i felt! You are so strong and your mum sounds like an incredible person. Just remember to look after yourself aswell, make sure you talk about this with someone and let them know how you feel! For your mum to stay positive throughout all this is absolutely inspiring, sometimes putting in a brave face may make things worse! Just remember that what you are going through is extremely difficult and no one expects you to not be upset by this.

  • hello 

    my mum had exsacley the same she managed 4/5 years with it she did amazingly well I was mums full time carer but sadly it went into all of her bones and we last her in November I could never talk to my family/friends I found it very helpful on her but never found someone with the secondary bone cancer if you ever need a chat to someone who has been throw it with a mum im always here x

  • Hello 

    l recently lost my dearest mother from gallbladder cancer which was diagnosed last year oct in its last stages mum recided to go with chemo and radiation just to maybe have abit more time with us.After her first treatment she was going down hill and had to be taken to hospital.She seemed to be on the mend but suddenly had a blood hemridge.She lasted three days after that it was so painful to see my mother dying.she passed away new years eve but died peacefully.lm still in the process of mourning my mother and my mother inlaw now has been diagnosed with bone cancer which is from the breast cancer she had four years ago.its spread to her legs,lungs,kidneys,bowel,spine.She is 74 years of age and lm her carer as l have been for many years.l take each day as it comes but it doesnt seem to get easier l miss my mother very much and lm loosing another.