New to forum

hi my name is Sharon and I am a carer for my mum who is on palliative care and is now living with me and my family 

  • Hello Sharon,

    Welcome to our forum and thank you for sharing your story. We are sorry to hear your mum is on palliative care. How are you finding looking after her at home? I imagine she likes having you and the family by her side.

    There are many carers on our site who I hope will come along shortly to share their experience with you. It is important to care for the carer so I hope you will find a little bit of time to look after yourself from time to time even though I can imagine this is difficult. We have some information on caring for the carer here which I hope you will find interesting.

    Best wishes,

    Lucie, Cancer Chat Moderator

  • Hi Sharon

    You are a truely wonderful daughter for caring for your mum in her time of need.

    I cared for my Dad in his last days and it was not easy. There were days when i thought i couldn't do it anymore, but then i remembered that i was doing it for him to fulfill his last wish, and i managed to dig the strength from somewhere.

    I cannot reiterate enough to make sure that you take care of yourself, but it will seem like the hardest thing. Even if you dont feel like eating, do. If someone offers to watch them for a couple of hours so you can get some rest, take them up on it. You won't want to leave her, and you may not sleep but you have to try, as lack of sleep impedes our ability to make good decisions and to stay strong.

    Finally, do not hesitate to contact the professionals (macmillan, district nurse, primecare, whatever resource is in your area) if needed. Do not feel like you are bothering them, you aren't. Your mother should not be in pain or distress of any kind and they can help with this. Make use of the people who are there to help and support you as in my experience they are lovely and it is really reassuring when they are there, and sometimes you may just need to be told that you are doing a good job or the right thing, and they can do that too!

    My thoughts are with you. Stay strong xx