can not cope knowing mums is going to die

please can someone be there for me as i feel so alone , my mum went into hospital 5 weeks ago with breathing difficaltys shes 85 , was given lots of tests mri ,  camera ,bloods ect , we then got told mum had  throat cancer  but they had to wait for biopsiy to come back ,that was 23rd december , then told on 6th jan she had a little by kidney and pancreus , they talked about a stent , but shes only 4 stone 10 and would not prolong her life , so doc said to make her confertable and try to stop the sickness and she may have 2 to 3 months to live , my mum only went to hospital as her breathing wasnt good , this is too much for me to take in , she lives 120 miles away from me and im so scared , she has been very sick last to days where she hasnt kept anything down , and doctor told me a couple of weeks ago she probley wouldnt survive more than a week or so without food or drink , im so scared , dont want her to die and to starve to death , feel so alone , please send me a message or a hug .. xx

  • Hi Nessbx, 

    I'm really sorry to hear about your mum and can understand why you may be finding it difficult at the moment but I just wanted to pop by and let you know you're not alone. Many members have been in the same position with their parents and will really understand what you are feeling and going through right now and I'm sure they will post soon to offer their support and advice.

    Stay strong Ness and remember that someone will always be here for you when you need them.

    Kind Regards, 

    Steph, Cancer Chat Moderator

  • Hi nessbx I'm sorry 2 read about u mum it's so sad :( my mother is terminal with bowel cancer she 71 it happen so fast with us my mother doesn't want 2 know how long she got we just taken each day.I know exactly how u feel  I felt exactly like u that why I joined on here there so many people on her going through silmer sitioution as u and myself. If u just need chat I'm here take care .[[ ]]

  • thank you so much for the hug and so sorry to hear about your mum ,is she at home ?? how you coping ??  hard to get my head around all this , im not sure if mum knows is a couple of months as not sure if they have told her , she  never talks about love death or cancer so we have not spoke about it or we dont hug , she keeps saying do i no when she can go home , im like not till your sickness is better , im now on sick leave from work as there is so much to take in and sort , im crying one minuit ok the next angry and snapping the next , cant go back to see mum till wed as finances arnt brill and hubby got to work so only get brief updates off hospital , she had a little soup on thu night and wasnt sick not sure about last night , sorry if im waffling . please tell me your experances as iv no idea whats about to happen  xxx

  • Hi nessbx my mother at home my father do look after her we all do our bit as well all of us doesn't live far . 2 years my mother have been fighting bowel cancer when she had her op there was turmours when they removed them they spilled 1 and she had 2 have chemo. Chemo made her so Ill she had 6 rounds but it was getting 2 much she was in hospital for 1 month we thought we going 2 loss then. She came alright last July she went 4 scan routen check up she was told they found mass they didn't know if it was on her ovary or bowel it took them until October to tell my mother it was on her bowel. My mother had phone call from the hospital 2 say there oppointment been made I remember my mother telling us if she got 2 have treatment  she take anything but not the chemo she had b4 because she was so ill. Any way she went to the oppoinment with my father she sat there only be told that it was inoperable and there nothing they can do my mother was in shock the Doctor said 2 her have u spoke 2 anyone my said no only 2 make oppointment it was all up in the air. I remember the phone rang I could here it in my mothers voice that it was bad she told me there nothing they can do I put the phone down I was screaming :( I phoned my partner he came home we all went up mothers we sat there and cried my mother kept saying she don't want 2 die its heart breaking :( Christmas new year was so hard we went up my mothers 4 dinner it was killing me knowing is this was last Christmas new year went 2 see my mother we left that all I done is cry. 12 came new year I was screaming it's so hard. Some days I'm laughing then it hits me and I'm back crying seening my mother in pain she can't walk far it's horrible she looks so old :( my mother have had few problems she been in hospital with bleeding not from her bowel they give her hormone didn't work month or 2 went buy they give her tablet 2 stop the bleeding I been so angry with doctors the way she been treating. Then just b4 Christmas she was going out breath and coughing she had Doctor they told my mother her lungs where ok they if her inhaler 2 help her breath just after Christmas her breathing was getting worst and coughing she had Doctor  told her she had phenomenon on 1 lung they give her tablets. she had x Ray my mother waiting ages 4 result turned out she didn't have phenomenon she got fluid she on tablets.when my mother found that she terminal she sorted everything out she don't want 2 die in hospital or hospice she want 2 be at home. That was upsetting 2 here my mother then started writing letters 2 my baby who just turned 1 that killed me knowing she wouldn't be around 2 see him grow up :( so much have gone on we just living day 2 day with my mother she wants  everything 2 be normal that hard. I never seen my mother cry so much like she do and she also hugs as more and tells us she loves us that hurts :( sorry 4 rambling I send u friend request and we can chat more if u want take care x 

  • Hi nessbx hope u all ok thinking of u all take care x 

  • I am so sorry you are going through this terrible time. I don't know if my experience will be of any help but I can certainly relate to how you are feeling. After a 5 year battle with cancer, my 83 year old mother passed away on 6th January and we held her funeral a few weeks ago so I am still reeling. When her treatment stopped last October we all knew it would only be a matter of time. After losing my father some years ago in tragic circumstances and being unable to say goodbye, I knew with my mother I had to make sure I had no regrets. I wanted to be as prepared as possible, to be fully informed of what to expect, where to get help and how to push for it, because believe me, you got to keep fighting right up to the end for them. I was constantly googling 'what are the signs of end of life' as I found no medical professional wanted to give me a timescale or indeed a specific list of things to be aware of. So, aligned with what I had researched, my mum indeed went through the many stages. There was the lack of appetite [the body decides when it doesn't need any more food and it's not wise to force feed], the need to constantly sleep [sheer exhaustion of the body dealing with everything that's going on], some confusion [going into the bedroom instead of the bathroom to go to the loo], forgetfulness [not taking the meds at the correct time], lots of phlegm [secretions in the throat which actually made her sick] and in the final stages hallucinations [talking to my dead father, waving to someone not in the room] and mottling of the hands/cold feet as the blood supply starts to slow. I managed to get her into a peace hospice on Christmas Day and it was a bed lottery, only 8 beds and one designated for her area. But I am so grateful as without the support of the angels who walk the hallways of the hospice, I would have gone under. As it was my mother was treated with kindness, care and dignity during her short stay, as was I. So, unlike my father, I have no anger, guilt or regrets, I just miss my mum so much and grieve for her everyday. If she ever asked me in the hospice when she was going home, I'd say when she was feeling better because it was near the end and I didn't need to tell her she was dying. She knew that as we had discussed it when she was more lucid quite openly. It was a difficult conversation to have as you never know if the other one knows, I call it the elephant in the room. But I took my lead from her. She said to me 'They are going to have to give me a different chemo now aren't they?' and I responded 'Mum, as Dr X said, there are no further treatments' and then from this followed the next question and the next until we both got to the same destination of knowing it was the road to the end. She actually said she was more afraid of living than dying as she was in so much pain and knew her life was almost over. We were not a huggy/I love you sort of family, we always took it as a given. But again I didn't want to regret not telling her how much I loved her which I did every time I left the hospice room and always said I was coming back. It was important for me to say this to her and on some occasions she said she loved me too, which was nice, but this was about her. I'm not sure if any of this is helpful and it won't make you feel any better when the time does come as you will have pain like no other which is OK, there is no right or wrong. But if you have the strength, or if you don't and have a partner/friend who can help, I'd say, for me, having no surprises and as much information/facts as possible was important - its painful, gruesome some would say, but its life and unfortunately for all of us at some stage, death. I wish you peace and strength. xx
  • Jessica298, I'm so very sorry for your loss. I can only imagine the devastating loss when they do finally slip away. My mum has melanoma which has now spread to liver and lungs. She's on immunotherapy and we're due to have a scan after her 4th treatment but she's been utterly exhausted. The one good thing is she doesn't have pain and I'm so, so grateful for that. My dad is being absolutely brilliant at looking after her and she's still in fairly good spirits. Mum doesn't want to know how long and so Dad and I respect that. Your description of what to expect is helpful altho I've not looked for any info on that yet. Whilst she seems relatively ok, I almost don't want to know. I'm not being naive as I know that in the end this disease will take her, but I can't think about that bit yet. I'll be back on here when things change as will need the support. For now though, I just wanted to offer my love and prayers to you, Nessbx and everyone else going through such heartbreaking times. Peace be with you xx
  • thank you so much for your reply , Im so sorry for your loss , i like you have googled everything as i too because iv got angiserty issues need to prepare myself , tuesday my mum moves from hospital to a nursing home9 miles from me instead of 120  she has been in hospital 8 weeks now and not seen her little home in those 8 weeks and will not again , its so hard ...

    i feel like iv had to battle with finding a nursing home and going to look at a hospice which was reallly beautiful ,( really nice place to spend your last days if you know wot i mean the staff seem so nice ) also had to battle with the cost of transporting mum to her new home by ambulance at a cost of £300 iv not got that kind of money nor mum really . it all adds to the stress of dealing with knowing mums gonna die and making her time left more comfortable and happy ... 

    im like you my dad passed away 8 years ago by heart attack never got chance to say bye ect and we also are not a huggy or i love you kind of family , which we havent spoke about the cancer .

    i feel like im sitting on a bomb waiting for it to blow with the 2 to 3 months diagnosis , they said around 3 months on 6th jan so now neaer 2 months i suppose ... some days i look at mum and even though she has syringe driver for sickness and shes 4st 10 thin , she dont look like shes dieing its so not fair , at leased when she moves i will be able to see her every day not once a week , ent 3 times up to see her last week 720 miles im just excausted and not sleeping as trying to sort everything , even stressing today about getting a nice cushion for her room ... 

    thinking of you and big hugs xxx

  • I'm so pleased your mum will be closer to you, it will make a real difference to you, because you tend to forget about you, making sure you are fed and get some sleep, so much easier said than done I know. And yes you are sitting on a timebomb, an emotional rollercoaster I called it which used to manifest itself in the most basic of everyday situations - my language became ever more colourful when driving, or someone queue jumping or even not having the right size nightdress in the shop for my mum. When my mum was in the hospice, I'd walk in one day and she'd be sitting up watching TV and the nurses would tell me she had eaten well, been to the loo and had a good nights sleep. Next day I'd go up and she'd be sleeping all day, had had a bad night and not eaten anything. Its a moving feast with twists and turns like no other. Your head will be like a washing machine and its a waiting game, a game you don't want to play but you are an essential part of.  And I can believe you stressing about the cushion because it is important to you and for you to demonstrate how much you care for and love your mum. Sendng you and every soul on this site my prayers and hugs, we are part of a group we never wanted to be a part of but when the time comes, desperately grateful to have people who truly understand the pain we feel. xx

     

  • Hi Nessbx, What an awfully sad and traumatic time you are going through. My mum died young from pancreatic cancer when I was 19. I know what you're going through it's indescribable, it hurts so much. You have an inner strength inside you that will Get you through this, believe me it's there!! Be her strength, comfort her when you can and most of all love her at this precious time. My mother died so many years ago, yet I still feel her love, that will never end or leave you. Cry as much as you want I know I did, but not in front of my mother. Tears will help you, give you a release from your emotions. Life does go on, you may not want it to, but it does, and eventually the gift of acceptance will come. Her love, your memories will always be with you. Thinking of you Nessbx and sending you the warmest of cuddles and hugs....be strong x