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Help!!

danni6285
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My mum has been diagnosed with kidney cancer & a shadow on the lung from a CT scan in November, she hasn't had any treatment nor have we really received any help apart from a few visit from the doctor & Macmillan nurse since.

Since last Thursday she has deteriorated rapidly, she hardly responds to being talked to, doesn't really know where she is & last night she got out of bed in the middle of the night & fell over bumping her head!! Luckily she didn't need to go to the hospital.

I am so angry at how me & my dad feel we have just been left to deal with for this and that they are not doing another CT scan till middle of February!! What happened to the 62 days with cancer treatment?? Why the hell is she still under urology (who by the way on the island are useless!) and not oncology!?!? Why is nobody doing ANYTHING!!!! 

I feel as though I am having a breakdown!! I can't keep my grip on reality, this situation is bad enough without feeling like we have been abandoned by the nhs :( 

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    Hi danni I'm so sorry to hear about you mum. 

    I know  exactly how you feel. 

    I can't believe they have just left you is disgusting 

    62 days is beyond a joke 

    here anytime you need to chat or have a rant 

    x

  • Offline in reply to sambo1990

    Thank you. If you also need to rant I'm here, I'm sorry I just needed a rant :( 

    I've been coping pretty well up until the last few days since mum has become very confused and not really sure where she is, I can't believe she's deteriorated so quickly in her mental state! I was prepared for the physical changes as expected but to in the last week completely become almost unresponsive has been a big shock.

    Luckily I've been signed off for a week as there's no way I could work at the minute, the doctor has also given me some meds to take the edge off my anxiety x

  • Offline

    Hi Danni

    So sorry to hear about your mum. Have you tried phoning the urologist's secretary and asking if she can find out what is happening. I know we waited over a month to see the oncologist once we were referred from the urologist. 

    There should also be someone at the hospital you can talk to about being left until Feb, does your own doctor not have any reports about what is going on? I know how frustrating it is getting into the system but once in they usually work quicker.

    Cancer is so unpredictable and the feelings you are going through are to be expected. We've all had a rant on here and it is good to come on and get support. Keep yourself well and talk to us and anyone else and go out for a coffee with friends you can off load to. It does help as I've done it.

    Best wishes to you all

    Chrissie

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