My Dad is dying

2 weeks ago my Dad went into A&E with a 4 week history of upper back pain. The following day we ( my dad and I ) were told he had a lung cancer with metastasis in his spine and liver and there is nothing that can be done but palliative pain control. I've virtually lived at the hospital for the last week but he is desperate to die in peace in his flat. I've been signed off work for a month and I plan to move in to his flat and care for him with the help of carers and the community palliative care team. I'm trying very hard to be strong for him but after seeing him today I really am struggling to hold it together. There is only me and my dad as my brother livesuch in France an my mother died when I was very young. Ive been a nurse for 20 years so I know I have the skills required to care for him at home but I'm so scared that I won't be able to do it, questions keep popping into my head like "what if his pain gets too much?"  I Desperately want to do this for my dad. These have been the worse 2 weeks of my life and I know it's only going to get worse 

10/03/2016 

my dad died in hospital 4 days ago, I didn't manage to get him home as it all happened so quickly. 3.5 weeks from diagnosis to death. He was terrified of dying alone and I promised I would be with him, I went home to rest at 23:30 as my people were going on and on at me to rest...... biggest mistake of my life so far. The hospital rang me at 03:53 and told me he was breathing his last breaths I got there at 04:20 and he had just died..... I was not with him as I had promised, I'm so devastated I went to a medium today ( which I don't believe in at all) just to try and speak to him to apologise for not being there, obviously I didn't get any messages or anything remotely like my dad. His last few hours he was very restless and confused, the nurses then gave him something to settle him and he was sleeping peacefully when I left at 11:30, I don't know if he woke up again between then and when he died. I don't know how anyone ever gets over this, I was very young when my mother died, less than a year so I've never experienced this before. At this moment I actually don't want to be here any more, I just want to be with my dad

 

  • Hi. My Mam died 2 days ago peacefully at home. She also had lung cancer she was a very proud women and refused to have carers. It filled me with dread that I would have to do it all as my dad is elderly.  Do you know what I wouldn't have changed a thing. Don't get me wrong it wasn't easy and I would return home crying everyday but in helping my Mam it also helped me tremendously. I'd like to think that I made her proud. Sending you a hug x 

  • Hi

    Thank you so much for taking the effort to post this after just losing your mum. I'm going to give my all in looking after my Dad, you are an inspiration. Sending a hug back x

  • Hi Julia,

    I'm so very sorry to hear about your dad, but what an amazing woman you are to be caring for him. And also thankful you have been allowed to be signed off work.

    My dad is in the last stages of cancer (prostate and badly metastasised into several bones - spine, neck, ribs, hips). He keeps defying the odds and has already lived 3 weeks beyond the 'any day now' diagnosis by the Macmillan nurse.

    You have come to the right place - people on here are wonderful and have helped with my understanding as well as my acceptance that my dad doesn't have long left. 

    I think just being there for your dad will be amazing for him as well as you. Do you have a Macmillan care team as well? They are really fantastic - and remember, you can't do everything on your own. 

    Thinking of you...

    Emily

  • I just lost my best friend to lung cancer sunday.  All I can say is be brave.  It's hard, but your doing something that no one else can really do for him other than you.  You will be able to do it.  As for pain relief for your dad the Palliative care team will sort that out.  One day at a time take it.  Julia you find strength in yourself you never knew you had.  Love to you.  I wish I was there with you.  X