The worry of waiting

My brother was diognosed with stage 4'throat cancer, he's undergone radiotherapy and chemo therapy which he finished approx 10 weeks ago, this is further complicated by him being HIV positive and has a kidney that is failing ; for which he has a drain in.

he is due his follow up scan to see if his treatment has been successful in about 2 weeks time.

since starting his treatment he has suffered pain in his face and head on the same side of his tumour. Over the last week or so I have noticed his face and neck are becoming swollen and his pain is increasing. 

Ive always known the prognosis might not be good, and have prepared myself for the worse, but the waiting is hell. I'm taking care of him by myself, it's not hard in a physical sense but emotionally it's a very lonely place. I brought him home to my home to care for him, unfortunately 2 days prior to me bringing him home my husband left me and my teenage daughter. I've now got the financial worry of running the house as I recently had to retire from work due to ill health, I had cervical cancer 16 years ago and have been left with very embarrassing ongoing problems brought about from pelvic radiation.

He sleeps a lot, when he's awake he doesn't talk much, I've tried to engage him in conversation but he doesn't really respond, obviously he's more worried than me but I just wish we knew...each day is longer than the last.

ive not spoken to anyone, everyone looks to me for the answers, for strength, to get us through. 

It is only me and my brother now, we both have our children for which we are thankful, but from our core family we have only each other.

not sure why I needed to write this down today, but I'm feeling better for getting it out, so thank you if you have taken time to read this.

sending love to everyone touched by cancer x

  • Hello thecaringsister,

    Thanks for sharing your story. I am pleased to see you have received a helpful response from one of our nurses in your other thread.

    I am sorry to hear about all your brother is going through and it can't be easy for you either as his main carer. I hope you will draw some strength from talking to others on this forum who have been through a similar situation and cared for a loved one with cancer. Sometimes it does help to put thoughts down on this forum and I hope you will get to talk to others who know exactly what you are going through at the moment. 

    Best wishes,

    Lucie, Cancer Chat Moderator

  • "...ive not spoken to anyone, everyone looks to me for the answers, for strength, to get us through. ..."

    You'd be surprised how "not alone" you really are if only you'd open up and you would be doing your children a favour (and your brother's if they are in their teens too) by doing just that.  This is a valuable lesson in life for them and by having you open up to them, you are teaching them how to cope too.  Not only with your brother's cancer but also with all the other challenges and stressors life has to throw at their way in adulthood ;) 

    My mother-in-law has pancreatic cancer and my father-in-law alzheimers and currently in respite care (his sight and hearing are failing too).  One day last week I brought him to visit with his wife and she was very short tempered with him, which I found heartbreaking.  That evening after returning my FIL to the care home, I came home to my 2 teenage children having a rather heated debate over a school project my daughter is doing.  

    Well, that just dragged me down even lower than I was already feeling and yelled at them to "just stop" I'd heard enough put-downs for one day and just burst into tears!  But that was the most cathartic moment I really needed for release and whilst my son and daughter wrapped themselves around me, my daughter and I both cried while my son joked around and got us laughing again.  We talked it out and I think it helped them to know where I'm coming from.  

    I wasn't cross with them or even upset with them and I made sure they knew that; I just really needed a release after a particularly hard week to-ing and fro-ing between my in-laws and their various appointments covering some 30 odd miles a day between the now 3 homes :(
    My husband spends the night with his mum whilst I spend the days with her and visiting my FIL at the care home whilst hubby is at work.  So between the 3 homes we barely get to spend a couple of hours in the evening together :(

    If it wasn't for that mini breakdown, I wouldn't be enjoying this week we both have at home, albeit to play catch up with things here which have been neglected.  And all because others now know that we are struggling, so family and friends are now jumping in to help.

    You'd be surprised where help can come from or just ears to listen to you, if only you open up.  I'm sooo glad I did, and relieved :)  In order to care for your brother, you need to look after number one....YOU!  
    Here's a good place to start; everyone knows where you're coming from on this site ;)  Your doctor is another good one, just start talking to him/her and you'll soon be breaking down and opening up and find the help you really need.

    Sending you lots of love and hugs to you and your family x