I knew my partner was sick when we started dating; the relationship is relatively new but we had been friends for a few years before we started seeing each other. We are both under 40.
I am the only girl that he allowed to know the details of his illness and to stand by while he carved a life out of it, redefining meaning at every juncture. Separately I have always known him to have trouble with intimacy and vulnerability more so than most of us, but I am not sure if this is because of the illness or because of his childhood, or both.
He had asked me my fears prior to entering into the relationshp and I had mentioned that his way of coping with his illness was a bit scary for me. That I would want to be present and supportive and I was afraid he would not allow me to be.
He said he would try harder this time around because he didn't want to go through things alone as he had in the past.
This month, many serious and quality of life related challenges caught him off guard just as we were learning to navigate our intimacy and making gains in that department. Our lives were very positive and our connection pretty strong. Because of these setbacks and stress, other than a brief period where he welcomed by presence and support, he is now resorting to his known coping mechanisms of isolation, basically shutting down his mind and not letting me near him. I understand and emphasize and do not want to make anything harder for him than it already is. He attempts to offset my anxiety and pain by communicating daily, but I am suffering nonetheless. I am afraid that with the uncertainy, I am not maximizing time spent together and I will lose him before he comes around, even though that is a bit of an exaggerated fear.
I try hard to recognize that this can't be about me right now, but I am not the most securely attached person at my core, and I have challenged myself in the face of his hesitations to be more independent, to self-soothe, to keep going.
I am now going through so many ups and downs, how unjust this is for him first and foremost, and also related to us and how things could have been.
Not sure if I am looking for direct advice more than to break the isolation of the day in and day out I am experiencing alone.
Thanks for listening.