Struggling

Really struggling to cope today. Just got back from the Hospital, have cried all the way home, and really surprised I've got here in one piece. My husband is in such a lot of pain and I barely recognise him any more. His spirits are really low, he's so drugged he's hardly making sense and this I feel is not even the worse yet to come. I miss him so much already because he's not the same person anymore. Not sure what's going on, he has some pneumonia but as it's sunday, have'nt seen a doctor today, but something just doesn't feel right.  Now really scared because they're giving him morphine which he seems to be quite sensitive to and I know he's really scared about not being in control....Can't believe everythings gone wrong so quickly.

  • Hi,

    I hope you manage to get some sleep tonight after such a horrible day. Nothing anyone can say will make it feel any better but a lot of us have a good idea of what you are going through. 

    Best wishes

    Dave 

  • Thank you for your kind words, Reading the posts on here really helps, but sometimes the anxiety becomes overwhelming and emotions get the better of me. Hopefully tomorrow will be a better day...

  • Hi tiggy

    welcome to the forum and sorry to hear that it's not going so well

    im now 2+ years post treatment for a head and neck cancer to which the treatment and after effects are quite brutal

    on saying that I always thought I had the easy part as I just had to give myself ove to the expert medical staff, my devoted wife and family and friends.

    i always thought my wife had it harder as everyone was looking after me and I was conscious that no one was looking after her.

    from day one she was part of my cancer journey and is still today

    in some ways you have to let you friends help it takes the strain and gives you someone to talk to

    this site is also brilliant for those who have cancer but also those dealing with the impact of cancer

    i had morphine and was thankful for it.....don't worry about not being in control concentrat on getting through the treatment and just trying to deal with what's going on in your life ..... it's a big thing

    im not sure what treatment you husband is going through but there are many on here who can help or will just talk to you if you need and ear

    weve been there , let's us help if we can

    shout if you need to

    vatch

  • Thank you for your kind support Vatch. My husband has bladder cancer which has spread to his lungs, pelvic lymphs and base of spine.  The bladder tumour was diagnosed in June with a small suspect 'spot' in one lung... it seems to have escalated quickly, despite chemo treatment. The thing I find hardest to deal with at this moment is that we were advised to go to A & E yesterday because of infection, they treated him quite quickly with some pain relief and antibiotics. He was then transferred to a ward and then moved again this morning, but he has not seen hide nor hair of a doctor today which I find hard to accept given he has such a serious illness.  The nurses are doing their best, but they are not quite getting on top of the pain and my husband seems confused and disorientated which has really upset me, I just wasn't prepared for this at this early stage. I don't have many friends as me and my husband are very close, we do everything together and he's always been my best friend and my first port of call in times of trouble so I'm completely lost without him. 

    I'm glad you got through your tough time with the help of your wife, and I'm sure it was very tough! Part of the reason I came on here was to get inspiration and hope from people who have got through and from the people that helped them get there and it does help a lot - today I just seem to have lost the plot!

    Although I feel like I'm being quite whiney, just putting some of my feelings into words on here gets it off my chest and makes me feel a bit better.

    Best wishes

    Tiggy

     

  • Tiggy

    although your husband is going through it, you are too every step of the way.... and that has its own problems as you have to watch you husband go through this treatment, whilst trying to show strength to support him .... a hard task indeed.

    one piece of advice might be to seek a second post on here asking people who have been through your husbands cancer for help .... for instance 'ghuidance on helping my husband through bladder cancer' in that way those who have been through this can advise you in how they dealt with it, to which you might find of use

    the moderators on here are also very good so ask them for advice

    help is on this sight and it's great help....use it 

    when on chemo the slightest infection could turn into something nasty, hence why you are advised to get back to the hospital when this happens. The chemo drugs kills the good cells along with the bad so your husbands immune system will be very low in trying to deal with the slightest of infections

    try to stay positive, eat well and sleep well, the last thing you need at the moment it to pick up a winter bug......

    shout when you want but perhaps add another post and speck to a moderator

    all the best and keep us informed

    vatch

  • Thank you Vatch, unfortunately today turned out to be another bad day, but I will take your advice and post again as you suggested.

    Best wishes

    Tiggy

  • Tiggy

    i am very sorry to hear that 

    shout if you just need to sound off or need some help from other knowleable sources on here

    isvthere a drop in cancer centre at your hospital, there are there for you too

    vatch

  • Twiggy 

    I am so sorry to hear your news

    this forum not only supports those with cancer but those who have lost a loved one through cancer too.

    there are many people on here who can help in your time of need

    shout if you just need an ear

    vatch