Hope you have had good news. Thinking about you both.

Chrissie

I understand your feeling of wanting to rewind to the "before" and to the opposite. 

Whatever happens you will deal with it. Being strong doesn't mean not having feelings. But it does mean being there for them, especially in the little things. Every time I take a glass from the cupboard I bring the one behind it forward,  as it hurts my partner to reach up. Little caring things that let me know I can make a difference. 

I hope you are supporting each other. xx

Thanks Chrissie, we didn't get good news I'm afraid... 

The next steps will be a new course of chemo (this time Irinotecan) but because the Folfox didn't work we were told there's only about 30% chances it does something. In any case, if it does work, this will be to prolonge life only.

immuno-therapy is not an option, neither is an operation or radio therapy. 

I hope your hubby is doing ok on his immuno-therapy treatment and that you are doing ok too.

Take care x

Hi BryonyO, thanks for your kind words. We are supporting each other as much as we can but my husband won't talk about it so it's not always easy. 

At the moment I find I am supporting him with day-to-day stuff (like carrying things for him as he has issues with his hands where he has lost sensitivity in the tips of his fingers due to the first course of chemo he had this year), and he supports me morally as I do have a wobble now and again, even though I do try my best not to!

Wishing you lots of courage too x

Hi froggybinou 

I'm sorry to hear your having a rough time. I'm on folfox and for me it's keeping things stable at the moment I had my halfway scan and the doctors were happy . The chemo for me is also not curative like your hubby. 

I've read a lot of other people's stories on the beating bowel cancer forum who have gone on to irinotecan after folfox hasn't worked and there are a lot of patients for who it works really well and have been having this non curative chemo for a long time. if you get chance have a look it is a really great site and lots of very supportive people who have loads of experience there is a special section just for relatives and friends who are caring for someone with cancer too which will be able to offer you loads of advice .

Sending you hugs 

Hayley xx 

So sorry to hear about your new fight. It is so hard hearing bad news. I hope your husband is pain free and I wish you both all the best.

We were at the hospital yesterday to get his new prescription and his blood pressure was sky high. Told us to see GP today and not to take his pill until he had seen the GP and what his blood pressure was like today.

Had best night's sleep for over 2 months and just shared a Chinese, something he can't face when on the pills. Anyway blood pressure back to normal and he can continue with pazopanib but have to monitor blood pressure am and pm for 2 weeks then take results to the nurse to analyse. So back to sleeping badly again tonight.

Look after yourself and stay strong. X

Hi Hayley

Sorry to hear you have to go throught this too, I hope Folfox carries on working well for you.

My husband had his first session on Irinotecan on Friday - all went well although he had a small reaction later in the afternoon (constant muscle spasms in his arms, shoulders and legs) but they checked him up and said he was ok and the spasms stopped in the evening and haven't reoccured since.

He will be having a few more sessions before they do another CT scan and see if it's had any effects or not... If not, then they'll stop it.

I'll definitely have a look at the beating bower cancer forum - thanks.

Take care and best wishes x