Pancreatic cancer metasised to liver

My husband is 56, he was diagnosed with pancreatic cancer, (which had metasised to his liver) on 1st June 2016 (the day before our wedding). We were told that it was inoperable and incurable but he would be given the option of chemo. He had 5 cycles of Folfirinox however a recent scan revealed that the chemo hadn't worked and the tumours had increased in size. He was offered an alternative chemotherapy - Gemcitabine - and has had 3 treatments so far. He is extremely thin as he finds it very difficult to eat. He has some food - tends to be ice cream or sugary sweet desserts and he has two fortisip protein drinks each day.  

We have three children 17, 18 and 23 who each deal with the situation differently. We are very strong and remain positive (most days)  however the question of 'how long have we got?' Is like a black cloud that just won't go away. We try to do as much as we can but sometimes the pain is too bad and we lose days. The chemo doesn't give him many side effects,  his pain is the biggest problem. 

In the original consultation meeting, the oncologist gave a prognosis of 3-6 months of the first chemo worked, and it didn't. We're now in the 5th month and although my husband is fighting hard, the time line haunts me. 

Id love to hear from anyone going through the same journey. 

Thanks, Gill 

  • Hi it's now 27 th October 2021 my husbands scan confirmed it was infact a reocurrance that was causing his pains in his sides and back etc,  this was due to the radio being cancelled due to covid!! in July 2020 we was told it would end his life snd gave his 6-9 months with without further treatment and possibly up to 13 months with,  he had a further 2 rounds of chemo and is now in the 15 th month snd still in pain but takes morphine etc for the pain, we are as positive as we can be and making the most of everyday, he's an inspiration as just gets on with it, I put on a brave face as am determined to make the most of the time we have left, all our kids are grown with just our youngest at home who's 16.  He is still working and full of determination and continue to strive to be the best provider he can be! I am soo proud of his courage ambition and determination,  he really is the strongest person I know. 

  • Just wanted to send my best wishes to you all x