My wonderfull dad, has glioblastoma multiform. he has so far been de bulked, and had radiotherapy course, and is on chemo pills, been frantically searching for as much info as the internet and drs will give , has anyone else been through this gbm4.
I’m sorry to hear about your dad and I hope you will get a chance to meet some of our very lovely members who I am sure will be willing to share their stories with you.
Also, if you feel like you may want to give our team of nurses a call, they are available Monday - Friday between 9a.m-5p.m on this phone number: 0808 800 4040.
I am sorry to hear about your dad. I lost my dad at about this time last year. He lived in Calgary in Canada while I live in the South of England. he had been in and out of hospital for about three years and several time my Canadian sisters and brothers were told to expect the worst. But my father was determind to keep proving the medics wrong and he did it time and time again; he wasnt going to go until he was good and ready and its made me so proud of him; such fighting spirit.
Sending best wishes and kind thoughts your way, Brian.
loved your picture, especially the one you took in canada lovely colours, the nut bowl i made , you have been hit hard to by the c word, so sorry , i am glad you are well, i was nervious putting a post on, but when i got my first reply, it meant so much. i hope you are still well now.
Hi cococat. i am so sorry you are going through this. Your so right, your story relates to myne. My father did 100 push ups a day right till he received the mri news. i think it may be bit different than your dad as there was already 5 tumors when initially found. so we have no idea how long they were there as he had zero symptoms until 6 weeks ago, then we were told 3-4 months left to live.
You have some time left with your dad and thats so amazing and good for you and your family! Spend all the time you can with him and treasure the moment.
My dads was aggressive also, went very fast. if you have any questions i will sure do my best to help answer them. Is there only one tumor? Did cancer start in the brain? I just wish i could reach in the computer and hug you...i know exactally how you are feeling and what you are going through. Contact me anytime. "hugs"
Pam
My Dad was diagnosed with a Glioblastoma multiforme stage 4 in March. I can imagine how you're feeling and understand completely. Sadly my Dad died 10 weeks after diagnosis, his tumour had spread - he was given 3-6 months to live.
I looked into so much, mainly raw vegan diet (alkaline diet) a few other things as well I was certain would help, but he just became so very ill and deteriorated so quickly. I understand that it would only prolong his life and that it wouldn't cure him
its positive to hear your Dad is receiving treatment, my dad was offered only oral chemo but was told it would only prolong his life by a matter of weeks (if at all).
hi pam46. thankyou, and sorry to hear of your poor dad, yes dads was a primary gbm4, hes having all the treatment now, doing and staying positive. thankyou so much for your kind words , I hope you are copeing best as you can, that was a shock for you all to then. sending you my best wishes.
Thats terrible for you, so sorry, how quickly that all happened, dads has been caught early enough for treatment his body warned him with the fit , then we were told the diagnosis, of glioblastoma.i hope you are copeing, what a shock thankyou look after yourself .
hi cococat. my dads cancer, after a biopsy of one of the brain tumors, was melanoma that metastisized to the brain. So the primary was skin cancer which we could not find on him but was an agressive spread to his brain. He was my world, always his little girl. I totally understand your not sleeping. that was a huge problem for me too. my sister and i cared for him right till the end so he could pass at home with us by his side. so sleep from the worrying and stress did not come and you just dont know how to get through the next day. my sister is a nurse and she talked me into seeing my dr. and i was prescribed some sleep aids and nerve pills to help me cope. it took the edge off and i was able to get some sleep. Dont feel bad if you need to do the same, i would of been a complete disaster if not for the medicine.
Do you live close to your family? Support and love of family and friends is so comforting and helpful. Can i ask if you have any children and what age? I have a daughter who just began university, so i am trying to be positive and the best mom i can be to her also as she copes with the loss of her grandfather.
i also have a strong faith and that has helped me so much too. I believe dad and mom are together and they are all around me now.
Also some words for you....i am not a very strong person...i worry lots all my life and suffered from anxiety most of my adult life so honestly when we got the news about my dad i thought i would not be able to manage. but i pulled through with the help and strength that you pull from within that you never thought was possible. i have moments when i crash and i feel like i am starting all over again from the bottom...but in time that passes. So what i am trying to say is we are all stronger than we think . I knew i had to be strong for dad or he would of worried so much about us girls.
Sending you strength and hugs today and the days to follow to you and your family.
hi pam46, started with skin cancer for your dad then thats terrible. yes have good family support near. were so relieved he came through the opp, then we were on tender hooks waiting to see how the radiotherapy courses would affect him, and now hes on the chemo part.
