Respite care for my mum 67

hello my mum was diagnosed a few weeks ago with a terminal sarcoma.  She is 67 she was very active - working going to Pilates and had a very busy social life. Whilst she has this awful diagnosis and is having chemo she is still coping very well - getting up, showered and dressed and doing house bits that she can.  I think this is really positive.  She is reluctant to go out but friends and family visit all the time. She also has laberyinitis which is a inner ear infection and episodes come on suddenly and she cannot move and is in loads of pain so this is more of a concern. 

My dad isn't coping and keeps saying he wants to go away (he is 3 weeks into caring) and is talking about mum going into a care home for respite (I work for a carer support charity so care etc and info advice is something I am quite knowledgeable about) I think this is a dreadful idea. One I think mum is actually very able and two she is young and yes needs a little help but is coping so well that it seems ridiculous to consider this. I've offered to go and stay but my question is -

 

is there a retreat centre for cancer patients we could access. Travelling exhausts her but I thought a retreat with care should she need it would be ideal.

 

any ideas..... 

Thank you x

  • I think it depends where you are, do a search for hospices nearby and give them a call to see what's available. Sorry that's all the advice I can give. Best wishes for you all xx

  • Hi

    Welcome to the forum though sorry to read the reason you find yourself here.  It really does seem to depend what services are available in your local area and whether you can afford to pay privately or need to access NHS facilities. It will also perhaps be worth asking your Mum how she feels about accessing this type of care help.  My own husband did not want to access hospice services and chose to have community nurse care alongside his palliative care nursing (he was just 62 when he died and only needed help with dressing/washing in the last three weeks of his three year journey with terminal cancer and could not cope with the emotional side of his illness and so preferred professional care at home - this was all arranged through his NHS hospital team/GP). We were given information by MacMillan about various services and I was aware that there was a hotel in Bournemouth aimed at providing medical assistance should it be required for those staying there.  Does your Mum have a MacMillan contact that your Dad could have a chat with?  He may also need support at this very difficult time and their GP may well be able to provide the information  you are seeking. All the best. Jules54

  • Hi 

    thank you for replying. Macmillan are visiting tomorrow and the GP Is amazing so we are very lucky, we live in cambridgeshire and have good services here - Addenbrookes hospital is amazing and the consultant is just lovely! So I am hoping the Macmillan nurse can help us a bit more regarding care (when needed). I've seen the Bournemouth hotel on the internet but i think travelling is a worry for my mum.

    sorry to hear about your husband. It's so tough for everyone.  Thank you for sharing.

    jo 

     

     

  • Thank you. We have a good hospice locally so are very lucky in this area with the support available. 

  • Hi Jo

    Hope you got some useful information from MacMillan.  My elderly aunt was treated at Addenbrookes and was very complimentary about them and the aftercare she is still receiving for her cancer (currently in remission).

    I must admit my  husband was not to fond of staying away from home once he had all the facts and really only left the house to attend appointments and see family when he was not too tired though he was still driving up until about three weeks before his passing albeit only short distances.

    Take care.Jules