Trying to Understand

Hello everyone;

I hope someone can help my confusion.  My wife had a small orange size mass removed from her colon a month ago, the pathology came back saying the tumor was cancer (20 of the 24 lymph nodes came back cancerous as well).  The Oncologist stated she has stage 4 cancer and once she heals from her surgery we would start chemo.  His plan was to approach the cancer with very aggressive chemo treatment, which consists of Leucovorin, Fluorouracil and Oxaliplatin and 4 th drug but not sure what it is, sorry.  At the time he stated the cancer most likely has spread to other organs but we will have a better clue once a PET scan is done.  

Before I get to the PET Scan I need to go back to her surgery, the surgeon advised us when she removed the tumor which was located where the Large Intestine meets the small intestine at the caecum, she noticed the following.  One my wife had numerous cysts on her liver but felt they were benign; she had a white lining on her stomach, not sure if it was cancerous and she removed 24 lymph nodes to be tested.  One last thing she felt she got the entire tumor around the intestine.  

Now we have moved up to the Pet Scan, when the results came back the oncologist said it was very positive, it appears her cancer was localized and it did not spread, the liver had 21 cysts and they were all benign, she had to unknown masses one in the upper chest the other in her intestine, the results came back could be cancer or nothing, the PET Scan could determine what they are, the doctor stated most likely nothing.  He stated she still had some cancer in the lining of her intestine and small cancer around her aorta, but felt chemo will handle what she has.  I asked since she received such a great PET Scan, why are you still saying she has stage 4 cancer, He said because the size of her tumor and there is a small patch in her intestine lining.  He said she will still have the same chemo treatment.  Her treatment is every other week for 6 months.  She has had one treatment.  It last about 3 and half hours with 3 different types of drugs, but one of them was more of a steroid.  She also had to wear a fanny pack with a pump which pumped more chemo in her for 48 extra hours.  

Just went to doctor today for follow up and blood work.  My wife had her first treatment last Monday and she has had very little side effects, only minor fatigue.  Her blood today came back with WBC at 15.2, which the DR said not to bad, Neut% was 67.4 and Neut# was 10.3, lymph% was 14.3, mono% was 14.8 and mono# was 2.26.  Now I only listed what came back outside the normal limits.  I do not know what these mean, except the doctor says they are fine and nothing to worry about.  I just wish I knew what these mean and if I should be alarmed. He said she is doing very well and after 6 months she will beat this and will be 100% cancer free.  One, I love his enthusiasm but I do not think any of us know yet, but I hope he is right.  Two what I have read and talking to many people who have been diagnosed with stage 4 colon cancer it is not as rosy as the oncologist is making this sound.  

Please don't take this wrong I love my wife and I want her around another 30 years ( I forgot to say she is 66 years old) but I just want to make sure we are being told the truth and if there is anything else I need to be looking out for.  Please help me understand what I am looking at and maybe I am not asking the right questions to the Oncologist.  I hate my feelings and I want to get them under control.  I need to work but I do not want to leave her side but I know I will have to.  But some days I am sad and cry, somedays I am mad, others I am depressed, and others I am just worn out.  I think if I had a better understanding I may eliminate some of these feelings.  I hope someone has an answer to help me…

  • Good morning Mike, 

    Welcome to the forum and I'm sorry to read the news about your wife's illness. It sounds like you love her very much and so understandably this is a very difficult time for you both. 

    I know that you've also post in our Ask the Nurses topic area and they will get back to you in the next couple of days. 

    I'm sure that some of our other members who have cared for loved ones will pop along to say hi and offer you some words of support. 

    Please do feel free to come and post here whenever you need to. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Hi Mike, I think you should trust your instincts - how can any one person know the future? It sounds really hard for you as you cant get your head around it or make sense of it because you dont know what will or wont happen. 

    I do hope these words bring you some comfort - my mum was diagnosed with terminal brain tumour in January this year and is going through this brutal process living alone.  She has no one, apart from me and my brother, I mean no man, to hold her up and share this with. So please take some heart in reminding yourself that she has you, she has someone to help her face this and please dont underestimate how much you are doing just by being there.

  • Thank you soory for the delay in getting back on the site.  Never knew being a caregiver for my wife as well as my 96 year old mother in law and throw in work who would think that would take so much of the day. :-)  Each day gets better and she gets stronger.  2 chemo treatments down 10 more to go...

  • Thank you Vickyd for your insight, sorry to hear about your mom and sorry for the delay in getting back on the site, my days go by so fast.  My wife's side effects are very minimal which is good, but the doctor is amazed she is not having any.  He said she still could could them or she might be one of the lucky people and never get any side effects.  We are hoping the chemo will destroy this disease and she will be cured forever.  The sad thing the odds at this point are not in our favor.