My husband got diagnosed April last year with metastatic alveolar rhabdomyosarcoma which was attatched to prostate and pelvic wall, he has 6 rounds of chemo that finished in September. Went back in January to find that a new tumour had started in his urethra. My husband is 37 and we have got a 3 year old and a 11 week old. I am really struggling as there is not much information about this cancer as it is usually found in children, all we know is that it is incurable and that it is a waiting game, which I think is the hardest.
My husband has just started his 2nd lot of chemo and is having a stent put in his urethra next week, dont know how much more I can cope with.