Hi sclc lung cancer

Hi people mum (59 at diagnosis) was told august 14 she had small cell lung cancer. She has shown amazin strength had chemo radiotherapy target to brain and we again on second lot of chemo round 4. The reason for the second as the tumor in liver has grown :(. Currently she keeps havin what i can only describe as convulsions but in her true spirit is refusin a GP! Shes luckily got oncology tomo and ive said she must tell him at least and agreed that she won't go into hospital as she is dead against this. She said she thinks its spread to her brain causin these episodes but wont let me do anything against her wishes or i risk not being able to help. 

Anyone else had a love one experience this? I know weve been extremely lucky to of had these past months bbut wish she would be more honest with the medics however i fully understand 

 

  • Hi there, my dad had non small cell lung cancer, squamous cell. Although they couldn't find a primary site they believed it was the lung it had also spread to the liver, adrenal glands, lymph glands. My dad decided to hide his illness until the last month. I remember sitting with the consultant and asking my dad a question and him not answering truthfully. My dad was stage 4 at diagnosis and passed away 3 days later after suffering a pulmonary embolism. I wondered if my dads had spread to the brain, I've read it quite often does. My dad was not well enough at the time for chemo and was suppose to start 2 weeks later if he was more active. Could it be some medication that is causing the convulsions? It's an awful experience watching a loved one go though this. My dad has been gone 4 months today and I struggle with how suddenly it all happened. Based on statistics I would guess your mum is doing well as is she classed as stage 4 as its spread to liver? I think my dad was in denial and never really wanted to trouble anyone too much, either that or he was actually forgetting things. He'd definately had a personality transplant over time.

  • Thanks for the response and sorry for your loss.im starting to lrarn that to expect the unexpected!! Everyone is so different. Yes mums stage 4 we were told 6-8 weeks if she didnt have treatment. Its been the biggest rollercoaster of emotions since just dont know what will happen next 

  • You've hit the nail on the head with to expect the unexpected, that's so true as it can go either way. People are always asking how long does somebody have left and you never truly know. Nobody expected what happened to my dad to happen like that. As horrific as it was we didn't have to watch him in constant pain for months on end and that's not nice either. Obviously I wish we'd had longer to talk about things. Life changes in the blink of an eye. It's horrible living each day knowing that you will be losing a parent prematurely, it's absolute torture. So was it August 2014 or 14th August your mum was diagnosed? I hope she gets on well tomorrow, are you going as well?