Hello, Radha, so sorry to hear of you brother's diagnosis. Unfortunately many cancers are being discovered and, therefore, more rare cancers.  Two of those I have are considered very rare.  Cancer Research are doing an incredible amount of research but it all takes a lot of time.

I do hope that your brother gets the help he needsin the meantime.I

Hello sorry to hear about your brothers diagnosis. I was diagnosed with fibrolamellar 7 years ago. Is your brother in the UK? There is research going on in the States.We have a facebook group which is very active if you or your brother are interested in joining. 

Hello again Radha. I hope you managed to find some resources to help you. I'm going to post a couple of links here in case you didn't and also if anyone else with Fibrolamellar comes across this thread.http://www.fibrofoundation.org a great place for information and news on the latest research taking place.It also has a list of Drs who are experienced with fibrolamellar  

We also have an active facebook group 'fibrolamellars of the world unite' it is a private group so you will have to send the admin a request to join.