Desperate sadness over my mums terminal cancer

I don't know where else to go so I was hoping this might be a good place to start. I'm Sarah and I am from the North East of Scotland in Aberdeenshire. I am 29 years old and have two brothers aged 26 and 23. My mum originally was diagnosed with breast cancer in 2010, by the time it was treated it was stage 3. It is triple negative. She beat it in 2011 and this was great. Then in late 2013 she developed a huge swelling on her sternum and in January 2014 she was diagnosed with metastatic breast cancer. I was in denial and thought she'd be cured again, it took me 6 months to realise this wasn't the case. Recently in September we were told she only has one chemo option left. This completely rocked us.  My mum is now at the stage of not being able to walk as she now has cancer in one knee and hip, I took her Christmas shopping yesterday and pushed her around in a wheelchair all day. I am struggling to cope. I kept catching myself trying not to cry in front of her. She is such a lovely lady, I know I am biased because she is my mum but she would do anything for anyone and is just so lovely and kind. She is my best friend. She bought a long necklace and it hung low and her skin on her chest is dark purple and even weeping where the cancer is coming to the surface. She says she feels like an alien and ugly. I told her she is so beautiful to me. It's hard to watch her struggling like this. I noticed yesterday her mouth is permanently turned down at the corners and I think it is because she is so sad. She is 51, she absolutely loves life, simple pleasures like gardening, walking her dog, drinking tea with friends. She desperately wants to live and I don't think she'll ever be ready to say enough is enough and my awful fear is having that decision taken from our hands. I'm terrified. It's having such an effect on the family. My dad is signed off with stress, I am signed off with depression, I am also at uni and I think I have just failed my final exams. I don't want to come home because I find the tension in the air awful but then at the same time I feel tremendous guilt because I don't want my mum to sense this - I know she does. My brother walks out the room regularly for the same reasons because the phone is ringing constantly and we keep having to repeat the same stories over and over again. Even our pet dog is suffering from anxiety. He is my mums dog and is very attached to her and he knows there's something wrong with her. The whole situation is just awful. Currently my mum is on no treatment. She was supposed to be going on a trial but because she can't walk she really needs radiotherapy and then can't start trial for 2 weeks after this. We feel she needs treatment now but everything takes so long to get started and this is with help from Macmillan nurses who have been super, emails from them, her gp and her breast care nurse and still we are waiting for treatment. We are going to see her oncologist on Monday and I am terrified of what he is going to say. I am just really struggling on a day to day basis with seeing my mum in so much pain and also the fear she feels. It's simply awful and I feel like I will never be truly happy again.  I don't really know what I am hoping to gain by writing this but even just writing it makes me feel slightly better. If anyone reads this and responds I will be very grateful. Sarah... 

  • Hi Sarah I think I've just replied to you on my post. I'm so sorry for you and your mum and I know exactly how you feel. I try to stay positive too I think it's a bit of denial as I can't imagine a world without my mum. This is the hardest thing I've ever been through as there are so many uncertainties and my mum wants to live the diagnosis was so sudden and such a shock we only thought she had constipation. Cancer is so cruel and an awful illness. Please message or inbox me anytime if you want to talk. Thinking if you and your lovely mum xxxx

  • Hi Sarah

    There are a lot of wonderful people here in very similar situations and I'm sure you'll find talking to them will help a great deal.

    My wife died from her cancer 3 months ago now and I've 2 children at University aged 21 and 20. Anyway first things first you say about finals and University and this sounds as if its a worry. I hope you've gone to see the University people to tell them about this - they can help in a number of ways. They will almost certainly give you extenuating circumstances around your finals. My daughter had one module simply disregarded my son had the opportunity to retake without penalty - they'll tell you what they can do but only if you tell them all about this.

    It is a very stressful time for all I know and you mustn't feel too guilty about the way you're feeling - we're not all saints.

    It makes you feel better to talk about it doesn't it - your mother certainly feels the same

    It would be wonderful if you could talk about it together - but I know that's not easy - in the meantime you could help her to find this or a similar forum and perhaps people on here could help talk to her about her pain and her fears too

    Best of luck.

  • LJmum and GrahamM thank you both so much for your replies. Means so much to me. I am sorry you are both going through such hard times. 

    Perhaps I am lucky that I am very open and very able to talk about it with my mum and anyone. In fact I feel the need to talk about it. Although I do think that some people are sick of me being upset. I am upset constantly. I have been crying in bed for the last 2 hours desperate for someone to talk to. I can't seem to stop crying. 

    I did speak to the university and I think I will have the option to retake as a first attempt in summer, my fear is that my mum gets iller in this time and I'll fail again but I hope to stay more on too of work this year.. I pray we can all enjoy Christmas this year x

  •  

    Sarah I am so sorry for your mum, she sounds like an incredible lady. My mum too is diagnosed terminal with a prognosis of a few months.

     

    i can completely relate to you feeling alone in your struggle, whilst people try to be supportive and ask questions it gets tiring answering the same things and I am sure my friends and partner are growing tired of me dissolving into tears, after all it must be tiring for them to try and understand also. Be reassured myself and I'm sure others on this forum will never tire of lending a supportive ear, we all need to help each other and I will keep a vigilant eye on your posts.

     

    i hope you can get something sorted with university, I have found being honest in these situations is best, I am very fortunate my workplace has been a great support. With Christmas approaching and my mum in hospital  I wish you all the best Christmas that we can muster with our loved ones xx

     

  • Hi, I'm sorry to hear about your mum I hope you are ok. I am going through exactly the same and hoping my mum will be at home for Christmas as she is still in hospital. The past week has been so up and down and although mum seems better she seems very confused have you experienced this? It's so difficult and sometimes I feel so lost. I hope you are ok and I'm always here to support you x

  • She is very confused, often over the time, date or things that have happened. She often doesn't remember anything doctors have told her when they have done ward rounds which is frustrating when I have missed them due to work hours.

     

    We have cancelled our Xmas meal booking we had planned as it is not feasible for her to go. We shall just have to make the best of it on the ward and be together.  I hope you are luckier and manage to salvage some Xmas day plans!