This roller coaster ride has so many ups and downs

Well after a very positive day yesterday dad rang this morning to say mum rang in the middle of the night screaming in pain and thought it was the end. She has been in pain all day which has been hard to control so they have now put a syringe driver on mum which worries me as is this used as a last resort when things are imminent? The consultant says the capsule around the liver is stretching and this is what is causing the pain mum says its excruciating. They have started mum on steroids and hope to get the pain under control. Mum is so scared and I am so worried.

  • Hi there, I read your post and just wanted to say I'm sorry you are going through this, my mum is extremely ill too. I've had to watch her crying uncontrollably for her mum she was in so much pain, saying what's the point in continuing treatment as it was only delaying the inevitable. And screaming too. It is just horrendous. However thatparticular  episode was a year ago now. It seems such a roller coaster. And very dependent on treatment. I pray for you and your mum. Sarah x

  • Hi Sarah thank you for your post. I'm sorry to hear about your mum I hope you are both ok. Today mum is a lot better it's so unpredictable and so hard. We are not sure if she will be in hospital for Christmas and it's so hard as we have 2 boys and we live 3 1/2 hours away. It's awful to see mum so poorly and upset x

  • Hi LJmum ..... I'm so glad mum seems a little improved, and am so hoping it continues. You are right that it's just like a rollercoaster ride!

    Thanks for asking about me on the other thread. I had chemo on Friday and it has started to kick-in this afternoon which is normal for me. I feel tired, find eating difficult and get a lot of stomach pain. Hopefully it will start to subside before the end of the week. My morphine dose has been increased for the first week this cycle so I am hoping that will help.

    Please keep in touch and let us know how mum is. Wishing you all the best and especially Mum x

  •  Hi Max, I hope you start to feel better soon. It's so upsetting to hear how you are suffering and I'm sending you a hug and hope you feel better for Christmas.

    We didn't get to see mum this weekend....family stuff....my brother and dad again! Can I message you? Not sure how to do these friend requests?

    Mum is very confused at the moment which is difficult to hear on the phone and see on Skype is this normal? I'm really scared that this is a sign it it spreading. She has also had a syringe driver fitted and they are talking about putting a bed downstairs, she has fluid around ankles too are these all bad signs I'm terrified. 

    Dreading Christmas with all the family stuff just want to see mum x

  • It's so sad that family issues are getting in the way of you seeing your Mum - I think you are just going to have to do whatever you feel is right and ignore your relatives bless you.

    I would imagine the morphine in the syringe driver is causing mum to be a little confused - it certainly affects me a bit and mum's dose is no doubt higher at the moment.  I don't know about her ankles but am sure the nurses on the ward can explain if you call them.

    Do you think you will get to the hospital before Christmas?  I hope so - you must both be missing each other.

    I don't mind you private messaging but I am away as of weds until the 30th, then have my family here over New year.  I don't want to let you down by not answering but doubt I will be online much. The forum may be a little quiet.  If you go on private messaging, you just request me as a friend I think. It's pretty simple.

    Sending you love and my best wishes sweetheart x

  • Hi LJmum ..... have now arrived at our sons. Just wondering how you are all doing? X

  • Hi Max lovely to hear from you. We went to see mum today as yesterday my brother said she has 2-3 weeks left. She looked really well was chatty and we were really surprised. She is a bit sleepy at times and sometimes she's like she has had a glass of wine! She is amazing and we laughed and cried and I've told mum to keep fighting she said its so hard but I'm hoping we have given her a boost.we spoke to the nurses who have said she is better today and they told us not to give up hope and I never will. We are spending Christmas Day and Boxing Day at the hospital and we are having Christmas dinner there. I feel loads better and hope she turns the corner. It's really hard as we are so positive and this upsets dad as he is so negative. I'm going to stay positive as we have had so many ups and downs. 

    How are you? Are you feeling ok after your treatment? I hope you have a wonderful Christmas you are amazing and have been a tower of strength for me thank you sending you lots of love and I'll be thinking of you at Christmas xxxx