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Very worried about mum

LJmum
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My mum has liver metastases from an unknown primary and she has had lots of tests scans and they can find no trace of cancer anywhere except from the liver. The liver has adenocarcinoma and it is widely spread. She was given the prognosis of 4-6 weeks without chemo or 6-12 months with. She started chemo on Wednesday with cisplatin and  gemticabine she has been admitted to hospital today with a high temp suspected infection and very tired she's hardly awake. I'm so worried has anyone been in similar situations and any positive similar situations messages would be appreciated. Thank you

  • Offline in reply to LJmum

    Never give up hope - thats what I always tell myself.  It will be hard for Mum to be positive right now and i personally think you must just listen to all she says - good and bad - and let her get it out of her system.

    When you have an incurable illness there is nothing worse than someone saying - you will be ok, be positive, etc.  I think hopeful is a great word !!!!   Mum may also want to tell you certain things in case the worse does happen in the future - so let her say them!  My family know all my wishes in the event of my death and I have left them all letters etc.  Your Mum hasnt had time to do that.  It doesnt mean she is going to die imminently  but she may feel the need to say these things - to be honest, cancer or not, everyone should make their wishes known in my opinion.  So please, if she brings them up, just let her say whatever she needs - it will be important to her.  There may be things you need to tell her too.

    I truly think there is still lots of hope where Mum is concerned.  She is on new antibiotics and lets hope that they clear up this infection she has.  Delaying her chemo wont be too much of a worry.  So getting her strength up again will be a great thing.  Ask if she can have some vitamin drinks to help her if she is not eating too well.

    Best of luck honey.  I am away for a few days for chemo treatment (I go to a different area for mine) but I will catch up with you over the weekend.  Love to Mum and fingers crossed x

  • Offline in reply to max56

    Hi Max, Thank you so much for your support. She is still spiking temperatures today and very tired she is having a cat scan today to look for abscesses on the liver so hopefully they might get on the right path of treatment and she gets a bit better. Still having lots of disagreements with my brother and dad but I rang Macmillan today and expressed my feelings and they like you couldn't support what we are doing enough. They also emphasised how important it is like you said for me to be there for my boys but I still feel guilty. I hope your treatment goes well and you feel ok. I know I'm going through it from the other way but I'm here for you too if you want someone to chat to. You are amazing and an inspiration to everyone on here and I'm sending you hugs and lots of love. Speak soon x

  • Offline in reply to LJmum

    LJ, as you've said on the other thread we same to be having a very similar experience. My mum has gynae cancer which has spread to the nearby organs. She too is now in hospital because of abscesses on her liver causing infection, high temp and confusion. She has no appetite and sleeps all day. It's very hard to see and very am frustrating as they can't seem to pin point the infection to find the right antibiotic, and also my mum has bad veins that collapse when they try to administer IV.

     

    If you seem to get to the bottom of your mums infection please keep in touch, I'd be grateful for any help and advice you can offer. X.

  • Offline in reply to KayT123

    Hello....my Mum has just been through brain surgery and lazer treatment. ....now to be told it has spread to other areas    Not the same as you but I wanted to reach out to support you as it is sooo hard to balance family and living with cancer.     Hope things settle down and take one hour/day at a time.  That is the only way I can cope.    Please take care of yourself  x

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