Quality of life

Hi

So it's now been 5 months since my wifes diagnosis of metastatic bowel cancer and still finding myself in the same black hole that I found myself in when we were first told the news.

When our oncologist said that the liver contained tumours almost covered half of the liver, it couldn't be operated on and that my wife would be on palliative care which she is now going through chemo for the forseeable. He said at the time that the purpose of palliative care would be to extend survival, promote quality of life etc. I'm sorry if this seems harsh but where exactly is the quality of life in all of this? Things have changed now for the worse as we have two young children also and is the hardest thing when we are extremely limited as to what we do or where we go. My wife on most days has very little energy, can't walk very far without getting tired, won't come out of the car when we go food shopping, sleeps quite a bit and at the moment has been down with a cold for the last 2 weeks as well as going through the chemo also. Surely this is just going to get worse but driving in to work this morning I started measuring it up, quantity over quality or quality over quantity. At the end of the day the chemo will only work for so long and then what? 

God reading it back makes me sound like a horrible, horrible person but I just don't know what to do or say anymore and feel my marriage is now strained due to the pressure of the situation. I can see now why people say it is sometimes harder for those who are the ones looking after someone who has cancer as I can't imagine ever having to deal with something so horrible as this. I was told my wife this week that she would like me to give her some smile, give her hugs and reassure her. I tell you, I'm trying. I really am but what about my reassurance, what about me? I'm in this too as our two beautiful young children?

Sorry rant over. Just wanted to see what others thought about quality of life etc.

Thanks for listening.

Parents
  • Hi I was so sad to read your story. I was in a similar situation. My husband was diagnosed with pancreatic cancer which had spread to the liver just 12 weeks ago. There was no cure for him. Unfortunately he passed away last week. We have 2 teenage sons who are grieving their dad and I am a widow at 36. When my husband was diagnosed we were offered palliative care, we were unsure to begin with so decided to keep him at home however he became poor and wasn't eating or drinking so he was admitted into hospital. He was there for a week and then we got a bed in a hospice for him. After 2 nights in palliative care he perked up and was wanting to go out in the car a run and go to the shops, we were so happy for the palliative care and feel without it he might not have got as long. The room he had was really nice and we got to stay over with him. He then got the chance of chemo but that was just to add a couple of months onto his life. Before he could get chemo he needed to get a stent put in as he had jaundice, he also got a nerve blocker done at the same time. Unfortunately he got an infection and passed away just a week later. I am so grateful for the palliative care and wanted him to have a quality of life and not suffering. it is so hard to go through this when you have a young family and  I had been caring for him but he was suffering, losing weight and in pain. I had never been through anything like this before but it's amazing what you will do for a loved one in this situation. All I could think about at the time was what is going through my husbands head, he used to say to me that all he wants is for me and my boys to be ok. I would say we are all going to be fine although I was breaking inside. Sending love to you and your family . 

  • Hi linda

    Thanks for your kind words and cant say how sorry I am for your loss. A real tragedy and something that no person or family shoukd have to deal with, ever. My wife is only 33 and I am 35 and our two children are just 7 and 9 years and cant even bare to think about how we're going to deal with whatever comes next but will battle through each day as it comes along. My family say they cant believe how strong i am dealing with it but dont have a choice really as i have to stay strong for the kids. What they dont know is just how heartbroken i feel inside. All the feelings ive read about are very accurate...angry, frightened, alone etc. Sorry am going on again.

    Take care x

  • Hi greeneyedman. I found the only thing that helped me was to take things a day at a time, I couldn't bare to look ahead. My friends and family said I was so strong also but I felt I had to put on a brave face for my children but was struggling inside. I found that speaking to some friends helped me and stopped me from bottling things up.  I feel so sorry for your 2 children and they to are at a difficult age, my eldest is about to sit exams and often cries but my younger one just seems to distract himself. Although there's only 2 years between my boys, like your children there is a big difference in how it affects them for their age. Its just an awful situation to be in and nobody deserves this. Thanks 

Reply
  • Hi greeneyedman. I found the only thing that helped me was to take things a day at a time, I couldn't bare to look ahead. My friends and family said I was so strong also but I felt I had to put on a brave face for my children but was struggling inside. I found that speaking to some friends helped me and stopped me from bottling things up.  I feel so sorry for your 2 children and they to are at a difficult age, my eldest is about to sit exams and often cries but my younger one just seems to distract himself. Although there's only 2 years between my boys, like your children there is a big difference in how it affects them for their age. Its just an awful situation to be in and nobody deserves this. Thanks 

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