I'm new to this forum. My Dad has ?CLL which he has received chemotherapy, radiotherapy and immunotherapy for. He is very poorly at the moment, bedridden for most of each day, with periodic coughing spasms, very poor appetite, and moments of not being lucid. I lie awake at night worrying about him. He was hospitalised in June and contracted the norovirus while in hospital. He had already lost 30 kgs and could ill afford to lose the 8kg more he lost whilst hospitalised. When he went in, he was optimistic; when he came out he barely spoke and seems like a completely different man. I cannot help but wonder what happened to him in the interim. Communication was so poor between everybody involved in his care that my sister, who lives overseas, phoned and finally managed to speak to a doctor on duty at the hospital after 11 days, my sister then rung my mother who lives an hour away from the hospital to relay what the doctor had told her. Our mother, who lives about an hour from the hospital, then phoned my father in hospital and told him the results of tests that had been performed on him and what the doctor had said. He was inspired by what he was told. We feel very let down by the system. I wonder what happens to all the people who do not have families or friends to advocate for them.
