Paranoia

HI.  My mum has got lung cancer.  She has not wanted to know the prognosis but we know it is not good at all.  She has been in hospital twice in the last few weeks.  Once for 8 days and last week for 2 days.   Both for infections and low oxygen levels. In hospital she became very paranoid that we, the family, were conspiring with the staff to keep her in there.  She wants to die at home and we want her at home.  She had her birthday a few days ago which was very poignant and bittersweet.  For the last 2 days she has become extremely withdrawn and will hardly speak to anyone.  She has not eaten much for a week.  She is now saying we are all in on it - it being putting her in a home or hospice.  it seems nothing we say will reassure her.  Is this common?  How should we approach this?  I dont want her last few days or weeks to be a battle or spark a huge argument.   My dad is caring for her at home and doing a great job. My sister and I are helping.

  • Hi

    So sorry you are having to go through this journey (I had similar with my husband).  I am not sure what medication your Mum may be taking but it could well be this that is causing her 'out of character' conversations/paranoia.  My husband often used to withdraw into himself (his way of coping).  You are all doing fantastically well in dealing with this at home and hope you have GP/community nurse assistance (this was invaluable for us).  Do mention your Mum's symptoms to her doctors, continue with your reassurances and I know its hard but remember its the cancer/pain/medication that causes these changes and you are doing everything you possible can.  Its a cruel journey and some times are harder than others. It might be useful if your Mum has a MacMillan nurse for her to explain gently to your Mum that you are happy to have at home (nearly all treatment for end of life care can be carried out at home if this is your wish -  its what my husband asked for and the community nurses attached to our GP came as often as needed during his final week). Hopefully other members of this forum will be along shortly though it can be a little quieter at the weekends. If you get the time let the forum know how you are all managing as there is so much understanding here. Regards Jules54