Hello, I'm really looking for some advice and support and hoping you can help....
My Mother in law (74) was diagnosed with AML in November 2014 due to her age she is not able to have intensive chemo and instead was started on low dose chemo (tablets) and also Azacitidine therapeutic treatment. The Dr said that she would have a year at best with treatment.
Since then we've only managed to complete one full cycle of Azacitdine in Decmeber 2014. It's been a constant battle since then with low HB and Platelets. She has had several bleeds and hospital admissions. She is now in the middle of the 2nd cycle but has had another bleed after the 2nd dose. She is having twice weekly platelet transfusion and it just seems like the disease is wining
Since her last hospital admission it seems like she has just given up. She has stopped leaving the house unless it's a trip to the hospital, has lost interest in personal hygiene ( usually an immaculately dressed woman) she is dependant on anxiety tablets and has had countless panick attacks about the simplest of things ie preparing a sandwich. She is literally just sitting on the sofa and is quite happy for others to do everything for her. She's just given up. It doesnt help that she won't talk about the illness and just seems easily irritated. I'm the cancer nurses that we have do not answer our calls and we just feel unsupported and just waifor the next problem to crop up. The Macmillan nurse s that we have access to don't return our calls and have not given us hardly any input apart from the day of the diagnosis. We are feeling unsupported and forgotten about. Any advice or support would be much appreciated. Thank you KAren x
