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my son has terminal Rhabdomyosarcoma

wifesam
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My little boy got diagnosed with stage 4 Rhabdomyosarcoma in nov 2012 at the Age of 4, sadly in June last year the cancer returned with a vengeance, just 5 weeks after finishing treatment, his prognosis is now terminal. 

It would be good to speak to other parents who may be in the same situation. 

Parents
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    Wifesam - I am so sorry to hear about your son. An additional resource for you would be Focus On Rhabdo - a community of families, clinicians and researchers dedicated to making rhabdomyosarcoma a survivable disease. We are on the web at www.focusonrhabdo.org and have a Facebook page as well. Let me know if there's anything that we at Focus can do.

    Alan Ehrlich
    Chair, Focus On Rhabdo

     

     

     

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    Wifesam - I am so sorry to hear about your son. An additional resource for you would be Focus On Rhabdo - a community of families, clinicians and researchers dedicated to making rhabdomyosarcoma a survivable disease. We are on the web at www.focusonrhabdo.org and have a Facebook page as well. Let me know if there's anything that we at Focus can do.

    Alan Ehrlich
    Chair, Focus On Rhabdo

     

     

     

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