Hi this is my first time on here, my 5yr old daughter was diagnosed in november and althought it was a terrible shock i have started to come to terms with it but i still get strong waves of fear washing over me. Im terrified and i thought maybe talking about it on here with people in the same boat might help
Hi leabea, I'm not in the same boat as you but my daughter, now in her late 20s was treated for ALL between the ages of 10 and 12 years old. Its a very difficult time for you all. The constant watching for a rise in tempertaure, the backwards and forwards to the hosp for visits or in paitients stay seems never ending - This and the day to day running of family life just drain you emotionally - no let up for parents.
Its natural to be fearful, especially when exhaustion takes over but remember that the ourtcomes have really come on in leaps and bounds for this foorm of cancer over the last few years.
Thankyou...it has been exhausting mentally. We are awaiting the results of her big mrd test atm - very stressful. Do u mind me asking if your daughter was low or high risk?xx
Hello, my daughter was diagnosed with Leukaemia ALL back in September 2013. She was only 20months old. She has just under a year to go. I worry every day. She's nearly died 3 times and it scares the life out of me. I think as parents we naturally worry but when it's this serious it can knock us side ways and keep us living in fear. How's she doing with her treatment? Xxxx
Not at all, ask away. My daughter was borderline high risk and had 3 intensive treatments, preventitive radiotherapy, and 2 years maintenance. She was very ill for the 1st 6 weeks and quite poorly for 3 months and after the intensive treatments. BUT she made it. Treatment protocols have come on in leaps and bounds since then.
MRD is now normal for ALL and give the consultants a very good idea how hard to treat, and how an individual is responding to treatment.
This is a scary time for you all - waiting for results. I do hope they are good.
