Prostate Cancer - wrong information given. Finding it hard to cope

Recently my husband was diagnosed with prostate cancer.  We were told by phone a couple of weeks ago that his cancer had not spread outside of the prostate gland and that his MRI and bone scans were clear. We went away on holiday relieved at the news.  Last Monday we saw a doctor at the hospital who was Bosnian.  We couldn't understand her accent.  She told us that the information we were give was incorrect.  The cancer has spread to his lymph nodes.  His bone scan was clear.  We wer told his staging is T3b, N1, M0.  Because we couldn't understand the doctor (who was the oncologist), yesterday, we saw a private consultant urologist who answered all our questions and was lovely.  However, he has put the fear of god into me by saying the worse case scenario is a life expectancy of 2-5 years.  I know he has said worse case but I can't get this comment out of my mind.  I cannot comprehend losing my husband ....... I am trying to be strong but keep breaking down.  My husband is going for a CT scan on Monday with results the Monday after to see how far in the lymph nodes it has spread.  He then starts 3 months hormone therapy, then 7.5 weeks radiotherapy, the 3 years hormone therapy (we were originally told after the radiotherapy it would only be 3 months hormone therapy).  I am feeling I just can't cope ...... I feel so weak.  Please help anyone - I don't know what to do.

Parents
  • I know exactly how you feel my husband was diagnosed on my birthday in Feb. They did biopsies on that day we were totally in the dark thinking we had come for results of his MRI. They told us that it had spread to his ribs and hips but not gone to lymph nodes and they would start him on hormone therapy but we would have to come back for the biopsy results. We went back this week to be told that he has an aggressive strain so now on the 21st April we are going to see a Cancer Consultant to discuss other treatment which could be Radio Therapy or a new drug trial etcetc. They have said years so far but I can't say this has made me believe them. I find myself every day thinking about it all I can't say anything to him as I don't want to rock the boat so to speak.   I really feel your pain ((((((((((hugs)))))))))

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  • I know exactly how you feel my husband was diagnosed on my birthday in Feb. They did biopsies on that day we were totally in the dark thinking we had come for results of his MRI. They told us that it had spread to his ribs and hips but not gone to lymph nodes and they would start him on hormone therapy but we would have to come back for the biopsy results. We went back this week to be told that he has an aggressive strain so now on the 21st April we are going to see a Cancer Consultant to discuss other treatment which could be Radio Therapy or a new drug trial etcetc. They have said years so far but I can't say this has made me believe them. I find myself every day thinking about it all I can't say anything to him as I don't want to rock the boat so to speak.   I really feel your pain ((((((((((hugs)))))))))

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