Hi niks

I was diagnosed with a brain tumour last February. As I was also diagnosed with totally unrelated tonsil cancer the same day , they dealt with the cancer first and I'm due to have the brain tumour removed this year.

I was terrified when I was told as I'm sure your husband is. I'm 46 and our kids are only 10 and 11.

Have they said it's definitely cancerous? They originally said that they think mine is a benign meningioma but that it would have to be removed within 5 years. They then changed their mind and decided to do it this year. If it is benign, they can whip it out and that can be the end of it so that's what I'm hoping for. A lot of brain tumours are benign - it just depends where they are and whether it's malignant.

I'm sure that, like me, your hubby will come to terms with it. It's pretty shocking at first but you get used to it . My hubby thought I was mad watching "brain hospital" yesterday when I'm soon to have my op!

Keep positive - they can do amazing stuff! I know from when I go to my appointments that people go years without needing treatment.

Debbie

Hi Debbie

Thank you so much for your reply.

Yes they have confirmed that its cancer, it is a grade 2 Glioma! We were originally told he'd had a stroke and that there was a chance of a tumour as there was a mass lesion showing on his scans, he was then refered to various hospitals before having it confirmed just before xmas.

We asked about surgery as my husbands reaction was initially that if you can get it out then thats what he wanted to happen. Sadly his doctor has told us that although he will never withhold any treatment, an op is on on the table at the moment as the tumour is in a working part of his brain and so he could effectivly come out of the op worse!

I sat and watched the last 20 minutes of the Brain Hospital too and thought "am I being wierd doing this" but at the same time I was sat watching it I was crying my eyes out!! I have what I can only feel like as a continual sick feeling in my tummy and I dont know if its for the cancer that my husband is suffering with or if its a selfish part of me thats thinking why is this happening to us!!

I am so pleased to hear that they have dealt with your cancer and that they will be removing your tumour this year...

I am trying to be positive and as I said I'm hoping thats whats showing to others. If me looking cool, calm and collected is going to help keep hubby that way then then thats what I will continue to do, but its nice to be able to come on here and be brutally honest about how I am feeling..

Thanks Debbie.

x

Hi Niks,

My husband was just diagnosed with brain tumour two weeks ago. He is only 31. We just got married 6 months ago.

His operation will be on the week after. His mood is up and down now. headache and sick is with him everyday. He is trying his best to be positive. I am trying to be stronger to support him. I don't know what will happen to us in the future. We planed a lot for our future, kids, travel, but seems... i don'g know. I am just so worried about him, and can't sleep well every night.

I always believe that there must be some reason for us to experience this terrible situation. I keep telling myself to accept everything happen in my life, and be thankful. It is difficult, but that's the only thing I can do to keep us positive. I really want to talk to somebody who has the similar experience. I feel lonely sometimes, especially when he is not feeling well.

Hope everything will be better with your husband, and be positive. I am with you xx

W

Hi

Niks - I'm so sorry that your husbands brain tumour is malignant and inoperable. Can they do radiotherapy or chemotherapy? Just watching and waiting must be so tough for you both.

And, Whitney, what sort of brain tumour does your husband have? I'm sure, like me, you can't believe we are having this conversation! You just have to try and remember that the doctors can do amazing things.

Debbie

Hi Debbie,

How are you?

My husband's operation went well, and I was told that all his tumour is removed. I don't know the result of the final biopsy, but I've heard the tumour may be grade 2 gliomas. Some people said this type of tumour are more likely to come back. I am still worried.

All the best,

W

Thank goodness for that simply great news Whitney. Thats another hurdle jumped!! No one really knows = but lets hope the doctors have got it all and it can't come back. The surgeons are very good

Hi Niks = your message is so moving. I think everyone does the internet thing and looks all over the place - I am sure it helps to get focussed on the job ahead. I am also heartbroken - Mr. C. has entered our happy lives and I don't know why. All I can say - is that its gutting.

Still, everyday brings a new dawn and a ray of hope and we have to walk on for the sake of our family. No one at work understands and can't make out the emotional side of things at all.

Its tough.

Hi Whitney

I am so pleased to hear that the op went well - you just have to take one day at a time. How is he recovering from the op?

Debbie

I feel the same as you, that I did not think this would ever happen to us, I am 38 my husband is 34 our kids are 10 and 8 and we are living with brain tumors as a secondary cancer, we keep getting told hes "unlucky" well gee thanks for that, I am broken, we are broken I struggle to cope trying to keep it together for him and the kids meanwhile breaking inside.

We have been told my husnands tumors (7) are innoperable and so the primary caner (lung) is not even there concern as the brain is the pressing one. He has had radiotherapy but that seems to have stopped the treatment, ie they are very much nothing more we can do, I want to scream and shout at them to bloody try everything hes MY husband MY childrens daddy they MUST do something, anyhting but they (oncologists and hospitals) dont really get the personal side how are we just supposed to sit and wait for the end, it is of NO confort they are surprised he is still alive and of NO comfort they think it will be a quick brain bleed in the end, I feel as if we have just been tossed aside and I am so bloody angry and lost and so dont know where to turn, family and friends are no good they try but they dont see me cry every day, wake up crying, go to bed crying, this is not how life is supposed to be............... 

sl75

There is nothing I can say that will help you and your family's pain (I am living with a terminally ill husband) as recognise your comments as though they have been my own.  Every cancer diagnosis is so personal but just wanted to say this forum lets you rant without judgement and I have been helped no end on my own journey.  My kids are adult but its still their Dad and to know we are fighting a battle that cannot be won makes it so very hard at times.  My thoughts are with you all.Jules54