Ovarian carcino-sarcoma

Just found out it's what my mum has. According to my google research it's very rare (1-2% of all ovarian tumours) and very aggressive and prognosis is very poor. My mum had her surgery about a month ago and now undergoing another round of chemo (she had four before the surgery). We think the cancer is all out of her following the surgery although having scared myself brainless with all my googling I realise that there are so many variations and meanings to that phrase. The only thing that sticks with me is how poor the prognosis is conveyed online. I haven't been able to speak to her doctors. I need someone to tell me that it isn't that bad for everyone. Has anyone been unfortunate enough to be affected by ovarian carcinosarcoma (also known as ovarian MMMT)?

I was feeling so happy at her progress after her surgery and now having read her pathology report I just feel terrified and sick to my stomach.

Mayski

xxx

Parents
  • I was diagnosed with this cancer eight years and three months ago. I had surgery and six rounds of standard chemotherapy. I have had no treatment since. I am fit and well for my age and have not looked back. ( I am 77) I was given two years maximum and in my case three months. Treatment has moved on since then so do not look on the black side. I understand your feelings, people in our position do but I am an example that there are exceptions.Please use every avenue to keep you and your mum in a positive frame of mind. Complementary therapies helped me no end. Colour me beautiful, the hat shop, reiki, reflexology, Massage and counceling from a local cancer charity.

    Keep well and smile as much as possible.

    Hope all will be well.

  •  

    I was recently diagnosed with stage 1a uterine carcino sarcoma and am due to speak with consultant next Wednesday to discuss chemotherapy treatment .

    it is hard to find anyone who has had a similar diagnosis as it is so rare.Well done on your continued recovery that is great to hear.I shall look into some of your suggested therapies they may help with my anxiety.

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  •  

    I was recently diagnosed with stage 1a uterine carcino sarcoma and am due to speak with consultant next Wednesday to discuss chemotherapy treatment .

    it is hard to find anyone who has had a similar diagnosis as it is so rare.Well done on your continued recovery that is great to hear.I shall look into some of your suggested therapies they may help with my anxiety.

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