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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Jules,

    I have just got back from taking youngest grandson to doctor's. He was off school yesterday and also today but when I arrived he perked up quite a lot. He has been sick and coughing a lot. Due to his trachy, he has little or no resistance to infections. Doctor just told daughter in law to monitor him for the next 48 hours.

    When we got back home he said "Thank you for taking me to the doctors Brian". Daughter in law said, "I know granddads name is Brian but you should call him granddad". Quick as a flash he replied, "Thank you, granddad Brian". This is the second time he has done this and he probably did it as he remembered we all laughed last time he did it.

    I have another 2 hour cancer meeting tommorow (Macmillan) and my 15 minute talk to another group next Wednesday morning follewed in the evening by our first wood club meeting of 2015. Subs will be payable so know I will be very busy. Our club has been featured in the Sussex Living magazing and they have done us proud. Several member are mentioned including yours truely and we allready have someone who wants to join our club as a result.

    We just have one red rose out in bloom but we do have our self seeded primrose flowering at present. Nature is all over the place this year. Talking of roses, Think I have done enough rambling for today

    Sending big hugs and kind thoughts your way, Brian.

     

  • Hello everybody

     

    Just to let all my forum buddies know that it is time to 'close' this thread as the category is not right for me any more.  I am going to ask the Moderators to set me up under the heading 'Life After Cancer' but will use the title ' My journey continues'.  Hope you follow me.  Best regards to all.  Jules