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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Jules,  I've only just managed to sign back onto the new forum - had lots of issues resetting password.  Anyway I'm back now but feel like I've missed so much!  I'm not sure I like this new forum look, I can't find private messaging anywhere and so looked for your thread, having found it it took me ages to navigate to the last page as there doesn't seem to be an option to simply go straight to the last page!  Anyway enough of my moaning - how are you?  I'm sure you will be thinking of your late friend as her birthday approaches. I hope hubby is doing OK.  Please let me know if you have found a way to PM yet!!  Have a good weekend.  Hope xx

  • Hi Brian

    Had my walk in the end (just used the brolly!!).  Quite a busy day for me with two shopping trips and then we were out in the evening. Hubby was enjoying the socialising at their local that they asked for an extra half hour (a few of the regulars were in so they were catching up and enjoying the karaoke performers).  Enabled me and my friend to enjoy a glass of wine after bingo (no win).  Today I popped to supermarket early and then went into town to do some Christmas shopping and enjoyed a coffee with a friend.  Hubby seems more relaxed when I 'get on with things'.

     

    Hope you manage to settle your blood sugar levels but am sure the nurse will sort you out if required with adjustment to medication.  Mum went years on the same level of meds and then all of a sudden needed an adjustment (probably due to dip in weight) but all seems okay just now.  Hope you and Mrs B have a peaceful weekend.  Am plannning a 'feet up day' tomorrow before the rigors of work on Monday.  Take care Jules x

     

     

     

  • Hi Garf

    Thanks for your post and I think many of us 'old forum' users are trying to adapt to new format.  Slowly getting there! Not sure if you will be playing golf this weekend - been wet and windy here today but have dodged the showers and done some Christmas shopping and enjoyed a coffee with a workmate so we could have a catch up!  Bingo was a 'no win' for either of us but as hubby was out for a little longer (enjoying socialising with group of regulars at the local over 2 pints of soft drink!), I had a relaxing couple of hours over a glass of wine. (quiet toast to my departed friend who would have turned 60 on Thursday).  Sadly our neighbour two doors down passed away suddenly and her funeral will be next week (we were close when the children were small as they were only a year apart).  Saw her daughter today and she is helping her Dad with all the arrangements (he is hard of hearing) - she still lives at home with her son and says that is helping enormously to keep them focussed.  Hope  you and Mrs G are doing okay and that all is well with extended family. Take care of yourself. Jules x

     

  • Hi Sueanne

    New format has rocked most 'old regulars'.  Took me a few days to 'understand' it enough to locate people. Find easiest way to 'search' for name or thread and also use the 'my activity' button which shows discussions you have followed.  I think you could have retained your old 'sign in details' by resetting your pass word (I went through this process the day the new site went live and found it worked okay (took me a bit of time to get my avatar right but Moderators sorted me out - that's the trouble with being a technophobe!! 

    How is your daughter doing following her diagnosis? Cannot be easy for her or the family and hope she has good GP support.  Hope little James is thriving (Zack turned one last month and his elder brother will be 6 at the end of November (I am babysitting that day so they can give  him his birthday treat - bowling with a couple of school friends).  Currently we are trying to arrange family meals prior to the build up to Christmas but are fast running out of weekends and am wondering where the time is going!  Hope you are keeping well and the dog walking is  not too windswept. Take care. Jules x

     

     

     

     

     

  • Hi Hope

    Lovely to hear from you and hope you enjoyed your half term break with lots of sunshine and relaxation.

    I felt like the forum had been 'closed' for weeks and yet it was only a few days and the first couple back were tricky for a technophobe like me.  Like you I struggled with the 'finding latest post' but now find thequickest way to it, is to click on 'my activity' button and this shows the latest posts you have received (having got the e-mail notification). If you click on the 'time of latest post' it takes you straight there. Hope this helps.  As to private messaging as far as I am aware this is not available yet as it ended with they changed over and were not sure when this would be restarted.  Hopefully the Moderators will let us know if and when it will be available again as I know many of us miss it.

    Hubby continues in much the same way, still managing  his Friday night social but rarely going out otherwise no matter what GP or I try. Have had a few conversations about it which are emotionally draining so next visit with him to GP at the end of the month (he has hospital check up mid  month) could be interesting.  I see no point in trying to force someone to be 'unhappy'  and he tells me he prefers to be left to his own devices - end of!  To be fair he appears more relaxed if I go about 'regular activities' so am doing my best to comply.

    Hope all is well with you and the family (no doubt your holiday already seems ages ago!) and that completion went okay.  Sending hugs. Jules x 

  • Good Morning Jules, Brian ,Garf , Sueanne and Hope.

    Have eventually found the right quiet time to takle getting back on to Cancerchat. Yes it's early on sunday morning and I couldn't sleep anymore so have got up for a cuppa and chat. 

    Do hope you are all well and thriving. I gather most of you have doubts about the user friendlyness of the new site. Well It will take a little while to get used to but I am sure we will all get used to it in a week or so. 

    Especially those of us who come on daily. The weather here is wet and windy and Chessie our dog has just come in soaking wet. She is now wrapped in towels in front of the aga, cooking slowly.!!!! LOL. 

    Have been a little busy this weekend with the family staying in the Barn with us. Ava has grown and developed further.She is a real toddler now and cute as hell. She knows how to pull and entertain an audience. A very happy little girl. 

    I have to say Jules it's nice to be back ,Have missed the regular chats that go on . Will catch up even more now and speak soon. 

    hugs

    Annabel. xx

  • Good Morning Jules, Brian ,Garf , Sueanne and Hope.

    Have eventually found the right quiet time to takle getting back on to Cancerchat. Yes it's early on sunday morning and I couldn't sleep anymore so have got up for a cuppa and chat. 

    Do hope you are all well and thriving. I gather most of you have doubts about the user friendlyness of the new site. Well It will take a little while to get used to but I am sure we will all get used to it in a week or so. 

    Especially those of us who come on daily. The weather here is wet and windy and Chessie our dog has just come in soaking wet. She is now wrapped in towels in front of the aga, cooking slowly.!!!! LOL. 

    Have been a little busy this weekend with the family staying in the Barn with us. Ava has grown and developed further.She is a real toddler now and cute as hell. She knows how to pull and entertain an audience. A very happy little girl. 

    I have to say Jules it's nice to be back ,Have missed the regular chats that go on . Will catch up even more now and speak soon. 

    hugs

    Annabel. xx

  • Morning Annabel

    Just 'checked in' as have been doing the housework (having decided to start did not know how long I had been at it!  Hubby being up early meant I could have an early start lol).  Am now imagining your dog steaming in front of the aga.  We had a miserable weather day yesterday but we are clear and sunny at the , moment so with no plans may venture out for a stroll later (still doing these alone as hubby still unable to follow GP advice, prefering to deal with things in his own world - actually have more conversation with him when he is in 'dream-state' than when he is awake - takes some getting used to). We are back at the hospital on the 18th but as he says there is  no problems with pain control (and that's the main reason for palliative care checks) I suspect it will much the same as usual.  They are now putting more pressure on me to 'motivate him' but try as I might he refuses to budge indoors let alone out! and seems happier when I go out so I am not 'badgering him' . Hey ho.

    Lovely that you have been able to spend time with children and grand-daughter - they are real little characters/charmers at this age. I am increasingly busy at work (hand in hand with time of year!) and with low staff ratios feel like I am in a full time position (only do 15+ hrs!). Still keeps me out of trouble lol. We are still managing our Friday social nights but no recent bingo wins so make the most of the company (and a glass of wine afterwards!).

    Well hubby 'channel hopping' to find something to keep him amused (to be honsest does not make much difference as he sleeps through most things anyway).  I now watch my stuff on the laptop as he has a habit of switching over when I am in mid programme.  Am currently in mid plans for family meals during the next few weeks (all weekends in December now accounted for in some way or another) but we are at our sons for Christmas so no extra food shopping this year!

    Hope you are keeping well and look forward to our next chat when you find some spare minutes. Take care . hugs returned.Jules x

     

     

     

  • Good morning all,

    Jules I am glad you are still managing to go to bingo on a Friday but I was thinking maybe the next time you get a win you could buy a small waterproof coat for Annabelle's dog? ;)

    It was my wife's birthday yesterday and without broadcasting her age to the world I will just say she is now 20 with thirty years experience.  We were going to Portsmouth Historic Dock but the weather really wasn't up to it so we will maybe go next weekend.  We went out for a meal and drink with family last night and had a really good night.  My sister in law filmed the waiter bringing in the cake with candles and all of us singing happy birthday but we have just this minute been told that she forgot to press the record button. It will take a while for her to live that one down!

     

    Sending best wishes to all.

    Garf. x

  • Hi Annabel,

    So pleased to see another regular member has negotiated their way to this new look forum. That saying about the early bird cathing the worm springs to mind lol. It's always nice to catch up with family and you talking about little Ava, reminds me of when my graddaughter was the same age. Even at that age, we had a great raport and still have. I willingly admit to loving children. Talking about this, some years ago there was a survey done wher they asked people if they love children and I think from memory about 78% said yes, but when they said if you were asked the same question in a room full of people, the % dropped to about 31%. The reason given was that they were worried that people might think they were peodophiles. At the same time a father admitted he had stopped cuddling his daughter in public after getting some funny looks fom people. What a sad world we live in.

    Now Ive got that off my chest, hope Chessie is now dried out. I  also hope you have a great wekend filled with fun and laughter with your family.

    Take care and will chat again soon, Brian