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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi George,

    Sorry I have not replied sooner. Thanks for the update concerning your daughter and pleased to hear she is coping. She sounds a lot like you in that she likes walking her dog.

    I wish you and your family plus Ria all the best, Brian


  • Hi All this is a fantastic site and we who have or have family with the cancer should use it ,well it does help we went with bev for lunch thursday she looked  fantasstic  for 54 years old good body and shape ate well a good day for all

    she will be on chemo till febuary ,but as I have said she is OK .regards for now .

  • Hi George and all my forum buddies

    Having a supportive close family and being there for each other is a huge part of the coping mechanism especially when you have quality time with each other.  I enjoyed a lovely day out with my daughter and son's girlfriend on Saturday with a lovely lunch and  spending some of my birthday money (day out was an IOU in my birthday card in August and we made the most of it).  Yesterday we spent a few hours with our daughter and family together with our son and his other half plus the grandchildrens' other Nanny.  This was to celebrate Zack's 1st birthday which falls this week. Have some lovely family picks/memories and having bought the eldest grandson a new book was delighted when he was able to read it to me (he turns six in November).  Hubby managed relatively well.

    I am now about to head off to work in torrential rain (have my wellies at the ready) though could well arrive looking like a drowned rat (so windy not sure the brolly will be much use).

    Hope you all have a restful week.  Hugs  Jules x

  • Hi Jules,

    Glad to hear you had a lovely weekend, celebrating your Birthday again.

    It's lovely to have a girlie time as well.

    Well Zack is one. Isn't it just 5 minutes ago that he and Ava were born. where does the time go?

    Happy Birthday to him.And your other grandson is six. I remember him about to start school.!!!

    Ava has started nursery 3 times a week as Mum has gone back to work, albeit part time. She had a gradual acclimatisation.

    It's definately time to get some boots out.

    The weather here changes every 5 minutes from bright sunshine and blue skies to heavy clouds and sudden down pours.

    I expect you will be putting out the Christmas seasons stuff out after half term. Don't over do it will you.!!!

    Hoping you and your husband have a good week,

    Hugs

    Annabel. xx

  • Hi Jules,

    Hope you have not got too wet during the past few days. My son has to work out in all this weather and the other day he went home soaked to the skin and frozen cold for the wind was blowing where he had to put up the conservatory. First thing he did when he got home was to have a hot bath. I am still eating a variety of nuts so Brianitus is going real strong. Feet dont seem to have touched the ground for a few day what with shopping, cancer meetings, woodclub meetings and last night a committee meeting for the wood club which I almost forgot. But today I have turned two items I have not tried before; two ring stands in Sapele and Radiata Pine and a small tooth pick holder in Beech and Black Walnut. Pictures attached.

    How did your visit to your mother go today? Cant nelieve that Zack is one year old. So pleased you had special time with family over the weekend and that hubby managed quite well which must have pleased you. I hope you have a good week at work and that work is not too stressful. Take care, best wishes, Brian.

    [[ ]]

  • Hi Annabel

    Lovely to have your message on my thread and Zack is one today.  As you say time flies and am always a little sad to see the baby phase pass.  He is now crawling 'fast' and walking round the furniture (sometime forgetting to hang on!!) and has moved from cot to bottom bunk and doing really well. His older brother is having to get used to being careful with his lego and other small bits and pieces .

    Even though my daughter did not go back to work her eldest went to nursery several days a week and I think she will do the same with Zack when he is around 2.  Hope your daughter is enjoying her return to work and am sure little Ava will love having other children to play with.  Think it helps with the move on to school later (now there's a thought!!).

    Hope you are keeping well.  Seems I will have to start turning my thoughts to inside 'housework' as the garden is really soggy now but the autumn colours are wonderdful.  Every season has its pluses.

    All the best to you and the family.  Jules x

  • Morning Brian

    You have been keeping very busy with all your activities and meetings (sometimes these all seem to come at once) and hope the variety of nuts are keeping up your energy .  I thought of you the other afternoon as I was watching a programme on tv where they visited a Kent Cob producing farm and think it would be a great place for you to go on holiday.

    Was your Brother in Law able to begin chemo treatment as planned?  I hope so as I am sure all the family will be glad to see treatment move forward for him.  Also hope everything is going okay with your Canadian spur of the family and that your Dad is comfortable.

    Yes, I visited my Mum as usual yesterday though it was 'much the same' as far as her mood was concerned.  Basically now she only interacts when she absolutely has to but the staff are continuing to motivate her when possible (she can raise a smile now and then).  She listens patiently to my conversation but makes no comment - sadly a reflection of how things were at home too yesterday.  I think both Mum and hubby are using sleep/closed eyes to avoid interaction.  I know I can only do/say so much but having had the chat with hubby's GP I really do not think it has helped the atmosphere indoors.  I feel under pressure to try even harder to help motivate him out of the chair (he is  just not interested and I am finding it more upsetting/frustrating knowing that the doctor expects more of him and thus of me) and feel the depression is overtaking the physical side at present - so very sad for him.   On the plus side he has managed small meals the last few days but it is still an effort to get him to taken enough food/drink (especially when he sleeps so much) to keep his weight stable - the prescribed shakes are available to him but most days I only manage to get him to have one or two  and then 'I am nagging again!!'  Hey ho.  I think he prefers it on the days when I go into work (off shortly) as his ears get a rest.

    I think your new 'woodturned' items are looking good and am sure you will be selling well at your next event as I can see a lot of people having something so individual to give as a present.  Thankfully though a bit wet on Monday, no rain here yesterday and at least its still pretty mild (we have hardly had to have the heating on at all yet).

    Hope you and Mrs B are keeping well and sending good wishes to you both and thank you (along with my other forum  buddies) for the chance to have a chat from time to time.  Sending hugs  Jules x

  • Hi jules

    Thank you for the message on my thread.

    I'm alwYs thinking of you and your dear husband.

    How are things going with you? How's your husband?

    I remembering you talking about your husband

    Always tired and no energy, well I was same and

    Mentioned it to doctor and a good friend at chemist

    Who recommend taking berroca it's all natural

    And u take it once a day, you put the tablet in a

    Glass of cold water my mix it up and then it turns

    Into a little lovely fruit juice,I wasn't sure about it

    Working but I tell you it works a treat a few other

    Friends who have same problem have started it

    And have had the same result. U need to buy

    Berroca boost . I thought I'd mention it incase it helps.

    Hugs to you both xxx

  • Thanks so much LMS for this information.  Will get some next time I am shopping as will try anything to raise hubyy's energy levels.  He is very low in himself and spends a lot of time sleeping.  His GP wants him to go out more as she feels he is not making the most of his physical capabilities and has told him if he does not make the  most of his quality of life now he will be wasting so much opportunity.  She asked that I motivate him to do things which I have been trying but he feels this is just nagging.  Such a shame that this cancer causes so much distress to sufferers and carers alike but will keep doing my best when I am allowed.  Have a good weekend.Jules xx

  • Jules, I'm sure you are doing your best to motivate hubby

    It's so differecult when u have no energy or feel tired all the time

    And it sure does get you down I know from experience.

    The berroca boost has been my god send

    My worst time is around 5 pm and as soon as I used to sit down

    I would be asleep and would only feel like asleep for a few mins

    But infact it was hours and I felt so bad I would also be nodding

    Off theough the day, untill I stArted these, it gives u a boost

    And makes you feel more alert and more energy it contains

    A lot of vitamins your body needs speaical when your appetite

    Is poor, it's a vishes circle.

    I really hope it helps then maybe you will find he will start to go out

    More and enjoy things together.

    Takecare jules and enjoy your weekend xx