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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Brian

    Kids think their parents are put on this earth to embarrass hem but very often it is the other way around.  Have to say your grandson did it in some style to.  I can imagine his parents might have wished the floor would open up but at least it gave everyone a laugh.

    As to the underwear I have heard similar stories before but you are never usre if they are true but given the number of these type of stories at least some of them probably will be.

    Best wishes.

    Gill

  • Good afternoon Jules,

    Not long been back from my cancer committee meeting. I don't have one now until the 3rd July. Motor failed its M.O.T. yesterday and cost me £350.00. Mrs B said I bet that's burnt a hole in your pocket so I replied "after this I haven't got any pockets left to burn holes in" !!!!!!!!!!!! Did you have the big clap of thunder this morning?  I was visiting our neighbour when it went off and really made her jump. It was raining quite heavily until about ten o clock but the sun is out now. and getting quite warm. Going to change into my shorts in a few moments (that will frighten the neighbours, and their cats/dogs as well and probably Mrs B as well) . Waiting to hear if brother in law has been allowed home for the weekend.

    Hope you enjoy watching your tennis. and that the weather allows you to spend some time in the garden. Hope Hubby is keeping well and you are getting lots of cuddles from your grandsons. Hope you and your family have a great weekend, best wishes to you all, Brian.

  • Morning Brian,

    Hope the cancer meeting was productive - they must really appreciate your knowledge and input.

    Ouch! the visit to the garage for the M.O.T. sounds very painful and can understand Mrs B's comment.  Still you (or at least the car) is now roadworthy.  Yes, we did have a very loud clap of thunder but unlike you it was a little later in the day.  I sat in beautiful sunshine in the garden and had breakfast after my return from shopping but the rain found its way to my neck of the woods just before mid-day.  Shortly afterwards our daughter and family popped in as our eldest 'needed to play with me' ahh!!  I and he were kept entertained playing hide and seek (did not know we had so many good places to crouch in (but oh my hip aches today)), bowling on the dining table (plastic skittles!!), reading (goes without saying really) and connect 4.  Both son in law and hubby managed a little doze despite the noise!!  After they left I had a power nap and hubby slept for around 4 hrs.(but it was worth it).

    As far as hubby is concerned his appetite is pretty poor and though he is managing milk and more liquids I can see the weight loss now. A new development seems to have surfaced in that he is now dreaming/talking far more in his sleep.(enough to wake me up!!)  I was putting this down to the 'morphine'  as eventually the dreams usually wake him up and even when dozing downstairs he is waving his arms around as though he is catching a ball (hope this is not too much information!!).  Well took the bull by the horns just now (following same thing happening (he is sleeping having taken his early meds a while ago)) and mentioned it and my theory.  Well says he has not had to take morphine relief in the past week!! So its good that the pain does not need high level of meds but does make me wonder if he is just putting the world to rights in his head (especially as he does not talk much when awake).  Sorry to ramble - its just something else to think about and  not be able to have control over I suppose.

    Right to keep me occupied I am off into the garden to top up the sunflower seeds as I have 12 goldfinches complaining!! Best wishes to you both.  Jules x

  • Good afternoon Jules,

    Both cancer meetings I've been to over the past few days have been well worth attending. Have got a fasting blood test tomorow morning so will be having a late breakfast.

    Has at last been cool enough for me to get out in my garage and do some turning. Didn't manage to complete everything but have worked out the method I will use for the next ones which will be better I hope. First ones always take the longest (See photo below) Mrs B burst out laughing when she saw the Apple man.

    Your grandson is so lucky to have you interact with him so well even if you do feel tired afterwards. But as far as I am concerned, that what being a grandparent is all about. Plus it does give us a chance to relive our childhood

    Reading about your husbands arm waiving when asleep reminds me of something my wife told me about my behaviour when asleep many years ago. One of my bosses at an engineering company I worked at for a short while had this habit of winding me right up. He was the worst person I ever worked under. One night I had come come rally worked up and apparently that night while asleep I punched the living daylight out of my pillow, muttering away as well, waking Mrs B in the process. As far as I know I only did it the once as shortly afterwards, I took a job with much less money but one I enjoyed doing. Took great pride in handing my notice in.

    Its funny you should buy strawberries and cherries as that's what Mrs B bought on Tuesday. I saw just one goldfinch in our front garden the other day. In our back garden we just have sparrows and blue *** with a few dove now and then.

    Have another cancer meeting on the 3rd of July but this one is more of a workshop type meeting.Hope the weather has allowed you to get in the garden and also allowed you to watch Wimbledon.

    Enjoy your day off and will talk again soon. Best wishes to you and all your family, Brian

          [[ ]]

  • Hi Brian

    I love the 'apple man' - he looks very cheeky and I think your first effort could grace any table - it would bring a smile to any fruit bowl

    Yes, despite the rain yesterday was able to watch centre court matches so had a very good afternoon both with the family and the tennis.  We were both up early today and by mid morning I was outside weeding and re-arranging some pots and now need to decide what to put in them!!  Also edged the path. that runs through the middle of the lawn so that when I next mow the whole effort will look much neater.  Had been growing a offcut from one of my shrubs and have now planted that in the back of the rockery (the butterflys love it when it flowers).  Took a break to walk to the  local shops to top up the milk rations (am out for the day tomorrow and do not want to lug it back at the end of the day).  I may well miss the Murray match tomorrow depending on what time he is on court but can watch it on catch up if needs be (never one to put off a social lunch).  Have just had a text from my late friends husband and we are meeting up for coffee in a couple of weeks time when he has a few days of work so we can catch up on each others family news.

    Have had to put dinner on hold as hubby once again sleeping but he wanted a 'cold spread' so have plated up and he can eat it when 'with it'. Apart from breakfast other meals are very much as and when these days but I do try and eat with him whenever possible.

    Hope  your visit to the 'vampire's den'  brings good results and I bet breakfast will be welcome after being forced to fast beforehand (I usually cheat on these occasions by having a banana in my handbag to eat on the way home - also stops me from  buying big bar of chocolate.  All the  best to  you  both and hope your cancer workshop goes well on the 3rd.  Jules x

  • Hi Jules,

    I hope you enjoy your day out today. After my blood test I had to buy another tax disc for my car so pockets got an even bigger hole in them now. Spent last part of the morning and part of the afternoon out in my garage (new photo attached) and the time taken on the two new additions has as expected come right down. Took Mrs B to the garden centre and she saw some 12inch high owls that are meant for the garden. She fell in love with four different ones, (barn, tawny, snowy and great grey owl ) They were so realistic and she said she couldn't bear to put then in the garden. They weren't that expensive but cant spend out any more at the moment. She has a birthday in November so will have a look in a few weeks time, just hope they still have them then. Did buy her two small ones though.

    Take care Jules, best wishes to you and all the family, Brian.

               [[ ]]


  • A growing family I see Brian.  Hope the 'owls' at the garden centre are there when you fancy buying that birthday gift as am sure Mrs B would be 'hooting'with delight.  Think your new wooden family would (with top hollowed out) make great tealight candle decorations and would bring smiles of joy to the table - well done.

    Had a good day with my friend (went by bus through the countryside for a change) and enjoyed lovely weather for the most part.  Managed to get a couple of gifts ready for forthcoming birthdays and great to catch up with her family news.  (Her hubby survived a Non-Hodgkins Lymphoma scare 6yrs ago but still has taste issues as a result of chemo so she understands, in part, how things are in my life at present).  We strolled the shops and found a few bargains (summer sales in full swing) and enjoyed coffee stop and light lunch before returning home before the rush hour hit.  Now waiting for the Murray match to resume following a rain stoppage so all in all a good day. (plus hubby has eaten everything I left ready for him so we can have a later dinner).  Take care and regard to the family.Jules 

  • Hi Jules, just caught up with your thread after leaving you a PM earlier. Glad you had a lovely day with your friend, plus added bonus of picking up some bargains. Hope you enjoyed the tennis. Take cafe. Hope x

  • Hi Annabel, I sent you a PM the other day, did you get it? I think maybe my PM messaging isn't going through for some reason. Hope things are going OK with you.

    Take care.

    Lorraine 

  • Hi Hope

    Thanks for PM.Will update once have been to the care home later this morning (stress levels raised at present but daughter and Zack due soon so will put on the 'face' and hopefully all will go smoothly and by lunch I will feel a bit easier. Tennis is providing a good 'distraction' at the moment and suppose we all need something to focus on in times of stress .  Have a good day and wil chat again soon.  Thanks for being 'out there' along with my other buddies.  Hugs  Jules x