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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Morning Brian

    Had a few quiet days as hubby continues to need more sleep. Seems to come in waves as though he is conserving energy for the days when he needs to go somewhere (like popping into work tomorrow!).  Still managing everything albeit slowly but am sure the fact that both his siblings are planning to move so far away is playing on his mind but he is, as usual, making little comment. He is amazing in that he never complains, gets angry (maybe he should!!) but it is sometimes hard to know what to say to him, and when, if that does not sound too crazy. One day I am still hoping for a conversational breakthrough but for now hope I am coping in the right way (strange how you question your own way of dealing with things when you cannot control what is going on around you).  Am off to work shortly and we are busy with monthly changeovers in store (though sometimes frustrating its good to keep myself occupied and am able to talk about everyday things - a good outlet).My main co-worker has been on a cancer journey with her husband some 6yrs ago so is very supportive and understanding (says she is returning the favour!!).

    Hope MrsB's brother soon has some idea of how treatment will proceed.  The waiting period I think is one of the hardest times.

    Hope, thanks for your post - will reply later as have to get going now.Have a good day.

    Jules xx

  • Hi George,

    Glad you have managed to put those pictures on here. If you get chance, I would like to see one of RIA on here. I don't do a lot of photography but I do enjoy taking photos of trees My son once told me "Dad, your the only person I know who  goes somewhere beautiful like the west country and end up just taking photos of flipping trees".

    Take care George, best wishes, Brian.


  • right brian you asked for it I take 1000s of pictures of trees and i have a few of RIA the RAT [[ ]]

  • Hi Hope

    Glad that you had a better day and you are so right about our feelings (no two days seem to be the same and think this is the case about life in general though going through so much just seems to make things far more 'in your face').  I jokingly told my husband about the 'being so bored with me he always drops off when I am home'  (Mum too!!) and he said 'it was not me' (then went back to sleep). Just as well that most days I still maintain a sense of humour. If you liked the 'walking frame sage' how about this one. At work today I had a 40 something ask if our left went back down to the ground floor (we are on the 1st floor). Am I missing something here or are there lifts that only go one way!!  It raised a few smiles I can tell you.  Not sorry this week finished at work - my body feels like its been through a wringer (our escalator has been out of order for some weeks now awaiting a part) so most of the stock movements are up and down two flights of stairs (customers' not too amused if we grab the lift!!).Today (just for fun) I made a note of how many times I did the trip and in my 5 hours I did 16 trips (no wonder I felt hungry and shattered in equal measure when I got  home).Trouble is if I sit for too long now I will seize up.

    Hubby still planning on driving tomorrow for a work meeting (100mile min round trip) so suspect he will be cream-crackered by the time he comes home but says he is still off out in the evening for his social night out (manages half a pint and a whisky usually and enjoys watching the karaoke as apparently they have some good singers among the regulars).  The district nurse rang today to check he had everything he needed and he told her he was okay.

    Great news about your son's exam. He must be thrilled and hard work pays off and it helps that he obviously loves his chosen path.  Your younger son has plenty of time for decisions.  My son went to uni and studied business management though he did not really know what he wanted as a career.  After a spell 'temping' in office and hotel admin he is now still doing admin but with a team attached to a Research Professor at Brunel Uni and is thoroughly enjoying new challenges.

    Well, better stop rambling and get on with the housework (well perhaps another cuppa first).Take care and have a good weekend.  Jules xx

  • [[ ]]Getting stuck again but lets try this one it is a tree Brian 

  • Hi George

    Just loving the pics of RIA - what a cutie. No dogs in our  household but son has a Westie and brother and sister in law have a huskie both not yet 2yrs old but bundles of fun when we see them.  Hope you have a good weekend  Jules x

  • Hi Flower yes it looks like we are at sons for sunday dinner,  a lot is still to come for me U S B 18th March  that is about my Crohns then review 11 April at the cancer clinic see Mr Ramani he that walks on water

    well he is the best and his team have been there for me for six years .But life as to carry on and that rat bag RIA is a big part of my life she walks me three times a day in all weathers .But that is the way to do it just live a life

    to the full .I am 81 in july we had a great party for my 80th last year   And who knows what this year olds a parchute jump ?a flight in chopper over Snowdon.????Take care flower .[[ ]]

  • Hi George

    Now there's a good looking chap on my thread as well as lovely flowers and four legged friends - I am being spoilt, thank you.

    Am sure you will enjoy your Sunday meal (I dislike cooking so any invites are always very welcome) with your family.  That waiting period for appointments is often worse than the appointment itself and I am sure your cancer specialist looks forward to seeing someone with such a great outlook to life and hope life is not too painful for you just now.  I would definitely opt for the 'copter ride for your birthday (never been in one myself!! but have done a tanden paraglide from the top of a mountain in Turkey - a moment of madness when on holiday a good few years back  to try to cure my fear of heights!!).

    Take care and enjoy a peaceful and happy weekend.  hugs from Jules x

  • Hi George and Jules,

    This is a photo I took of a beech tree which is growing over a wall near Bayham Abby ruins.

                  [[ ]]

    If you click on the photos, it will give an enlarged view.

    Thank you George for posting photos of your best friend Ria. She looks quite a character and I bet she keeps you on your toes with all the walks.

    Best wishes to you all, Brian.


  • Hi All this is a great place to be when things start to go wrong as it does from time to time  I have been in a theatre operation that is 7 times over the years but I have been to funerals of many lads and lassies

    I went to school with .But no regrets we  have had a  fantastic life her and I we have a great family around us ..We have just ate a very good curry and will suffer for it but it was great .Now lets find a picture for you girls .[[ ]]