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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Jo

    Thanks for your very kind words.  Not sure where I would be without the continuing support of this forum and though only a 'wife' on the fringe so to speak I am often humbled by what those that are suffering manage to offer in their words of wisdom and fight.

    My internet connection has been on and off the past few days (putting it down to high winds/rain - have no techy knowledge!!) and its adding to my frustration being cut off for hours on end from my virtual support network (never though I would be saying that!!).

    Hope your current chemo infusion does not cause too much upset and that you and the family can enjoy the festivities a little (or a lot if possible).  Hubby has taken several calls from friends enquiring after him this week (must be the time of year and they have stopped sending cards!!) which at least has given him something to concentrate on.  He has an appointment with GP on Monday and then hopefully he will be able to try and enjoy the family get-together.  He currently dozing in front of yet another fishing programme with neighbours cat firmly on his lap).

    Take care virtual friend and send you peaceful thoughts and best wishes for the coming week and beyond.  Jules xxx

  • Hi Jo,  Thanks for your post, wishing you a peaceful Christmas and I really hope you are going to be pampered as you well deserve.  I have finished work now and am so looking forward to getting away.

    Hi Brian,  Thank you too for your post, wishing you and Mrs B a lovely Christmas, I am sure you will enjoy your time with your grandchildren.

    Hi Jules,  Likewise I am sure your lovely grandchildren will bring a smile to you and your hubby over the Christmas season.

    Thank you all so much for your support over the past few months since I joined this site.  I am still very sad, and still have very difficult days but I am so trying to be positive for the New Year and I know I can count on my friends on here to help me.  Hope xx

  • Hi Jules,

    Hope your Router is behaving itself and you are able to get on-line when you want to. We had a phone call yesterday regarding my brother-in-law. It's not good news I'm afraid. The cancer has as expected got out from his prostate but it is in his hip, knees, ribs, arms, back and spine. Some of them are only small patches but my sister-in-law was very worried as they are now waiting for a hospital appointment to sort out a care plan. She was concerned that until this is in place, the cancer is still growing. I was able to tell her the hormone injection he has already had doesn't just work on the prostate as it is also used for breast cancer patients so it will be holding the cancer back and possibly shrinking it. She is also concerned that due to Christmas he will not get his appointment through very quickly but I was able to tell her they have to see him in so many days and the hospital he is under has a good reputation but I do understand her concerns. My wife has not taken the news well either so have had to try and calm her fears as well.

    Hope you and your husband enjoyed the party / anniversery last night and that you are not too tired today as a result. It is raining hard here at the moment and it's so dark we have had to put the lights on as I could not see my keyboard. I have also seen on my computer this morning that we could have snow for Christmas.

    Do take care and can sense you are looking forward to finishing work on Monday and hope you are able to take a well earned rest.

    Best wishes as always, Brian.

  • Hi Brian

    Sad to read the news about your brother in law but know you will bedoing all you can to keep spirits high and so hope the care plan will be in place sooner rather than later - so difficult when it all happens around a holiday period.  Take care of yourselves during this troubling time for the family.

    The party last night was let down by the venue sadly.Held in a local AAlisted hotel but  Not enough seats for the 80+ guests. Hot meal served cold on chipped and cracked plates being served by 1 poor youngster who did nothave a clue what to do/say when vegetables ran out and gravy came half hour after food!! The party tables wereset up on the small dance floor so when food finished they cleared tables (and all the seats away) so it was standing room only.  Needless to say we were home by 9.30 as there was no way we could stand all evening.  Hubby has been pretty low today (and tired) as I think it just reminded him of his limitations.  Now putting it behind us, we have watched the re-run of strictly which we missed and he is enjoying tea and biscuits (first time in ages~!!).

    My son and I visted Mum this morning and at least we got a few smiles and a Happy Christmas before she dozed off bless her.  We waited till she woke up and think she was surprised we were still there!!  We have left gifts/cards ready for Christmas Day (along with emergency contact details for whilst I am away) and will be back to see her after the festivities which she wanted no part of (she always used to leave the country at Christmas to get away from it so its no surprise she has little interest).

    The internet is on then off then on again and will have the linelooked at after Christmas if it continues.  Was surprised to hear you had rain.  We have had a mainly sunny and mild day but still pretty windy with apparently worse to come.Hey ho.

    I will be happy to finish my shift tomorrow (am probably on my own on the department - no extra hours or staff this year!!) and put my feet up for a few hours.  Hubby has his last appointment in the morning with the GP and a friend popping in for a tipple in the afternoon and then we are away from the evening of the 24th and am hoping he will enjoy this valuable time with all the family.

    Do wish you and your wife and the rest of your family peace and goodwill  and hope to be able to chat again with my forum friends after the Christmas break (no computer access whilst we are away and no mobile signal at my sister in law'shome so should be peaceful.

    kindest regards Jules xx

  • Hi Jules,

    Sorry to read that your festive party was a let down! Not only disappointing for the guests, but what a blow for the 'hosts' too!

    I hope your final day at work goes smoothly! We ventured into town today and were pleasantly surprised at the level of crowds!

    We didn't stay too long though, an hour and a half was enough for me! Managed a festive coffee in that time though!

    Hope your hubby's GP appointment goes well tomorrow too!

    I know you're going to be techno- free over the holidays, so have a great break, enjoy the walks, the food and the family games!

    We'll chat soon, festive hugs to you and your family, Jo xxx

  • Hi Jo

    Thanks for the lovely message and hope once recovered from your foray into the shopping centre you will enjoy the festivities with your nearest and dearest and that your 'batteries' are rechargeable.  Take care my virtual friend. Hugs from Jules xx

  • Hi my friend Jo,

    Thanx for your reply. I can really understand your need for a quite Christmas as in no staying guests. i love your comment about  your infuser not snorring!!!! but how the hell do you snuggle up to it?????? LOL.

    I have to say so far in life Jo I have never been given steroids so have no first hand experience, although have heard previous patients talk about the side effects. I certainly don't need the enhanced appetite, the insommnia (now going through a fairly good stage of sleep) the mood swings (what are they ???) but I've beaten you on the beard, nearly asked Father Christmas for my own electric shaver but decided the country walking boots would be nicer and even more useful.

    Just been over to North Yorkshire today to have Christmas dinner with my parents. It was snowing well on the A66 Pennine road,  at Stainmore top, but not the other side. Last minute food shopping tomorrow then I can settle down to things domestic.

    The atavar is certainly a dog and I would think you are right that it is probably a beagle. The reason I picked it is that it looks very much like my labrador Chessie. I bred Chessie from our previous labrador Maddie, who was a black lab. I asked her to give me  a golden female lab and bless her she had all golden females. Never thought I would have to chose which one to keep. I planned last year to breed Chessie with a black lab in February to get another black lab but with the news of my cancer and operations I am afraid that got put on the back burner. We might do it this year. Fingers crossed I've got the energy.

    Hope you have a lovely day as possible at Christmas. I shall come onto the site morning and evening so will chat if you are around. Will also talk hobbies later as got to serve supper in a mo.

    Take care of yourself Jo and let that man look after you as well.

    hugs

    Annabel xx.

  • Hi Jules,

    Shame that the party wasn't as good as it could have been.  I hope you enjoy a lovely time with your family over the holidays and that hubby gets on OK at the GP tomorrow.  I too will be going away so will speak again after Xmas.  Take care.  Hope x

  • Hi Jules,

    Just wondering when you are off for Christmas? Are you travelling Christmas Eve, take care when you do love, weather forecast isn't great with the wind factor. It's snowing here again tonight, 3rd time this week. Not settling too much just yet though. I hope you have a really lovely Christmas and a restful time because you deserve it. I hope your whole family enjoy themselves especially your husband. Take some lovely photo's and make some lovely memories.

    Look forward to chatting when you get back.

    Christmas hugs

    Annabel. xx

  • Brian,

    You have helped me from my first post on here and I shall always be grateful to you for your response.

    I hope you have a lovely peaceful Christmas day with Mrs B and a glorious boxing day with your family.

    Christmas hugs

    Annabel. xx