My baby daughter was recently diagnosed with grade 3 ependymoma , we are still awaiting so many results and tests and even if it’s curable and i was i suppose looking for support of anyone who may have either been through or going through it
I'm very sorry to learn about your daughter's diagnosis. I can only imagine the impact this news has had on the you and your family, but I do hope the results come through soon so you can work out the possible next steps with the doctor. In the meantime, we have information on Ependymoma in children, including making decisions on treatment.
No doubt this has been a distressing time for you, but it's important to look after yourself and don't be afraid to lean on friends or family that are close to you. I'm sure there are people in your corner.
We have lots of lovely members in this community so I'm sure you'll be connecting with others and we also have a friendly team of cancer nurses available on our free helpline, if you ever wish to speak to someone over the phone. The number is 0808 800 4040 and lines are open 9 to 5 Monday to Friday.
