Follow up care - my husband hasn't had any reviews since January. Should I be concerned? Who do I contact?

Hi all, my husband had radical surgery and  follow up chemotherapy for bladder and kidney cancer finishing in November last year.

He now has only 1 kidney, no bladder etc and has a stoma. 

He has diabetes which is currently unstable and heart issues for 10 years.

Should I be concerned that he has had no follow up reviews since January despite contacting the urology department. I was expecting something to monitor the remaining kidney.

Who do I contact to see what if anything is going on, as everyone I have spoken to passes me to someone else?

Maybe I just need some reassurance that this is normal practice 

Thanks for reading

  • Hi AliceM25,

    I can completely understand why you would expect your husband to have follow up reviews after having radical surgery and follow up chemotherapy for bladder and kidney cancer and it must be worrying too to know that he also has diabetes and has had heart issues for 10 years. It would be reassuring indeed if they could keep an eye on everything and monitor the remaining kidney. You did well to contact the urology department and I would have thought they would be the right people to contact but I am sorry that you haven't been able to speak to someone who knows what the next steps might be. Could they put you in touch with the specialist who will be in the best position to give you further guidance as to what to expect?

    You definitely need some answers on this and if you are struggling to get clarity, it might be worth contacting your GP surgery and explaining your situation and perhaps they can find out from the urology department what the follow up care will be like for your husband. Perhaps you could also tell them about your concerns and your husband's other medical conditions and your desire for him to have regular follow-ups and that he hasn't seen anyone since January. Hopefully they will be able to get the ball rolling again... 

    Our cancer nurses might have additional advice for you on this too so don't hesitate to give them a call on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm. 

    I hope that you will also hear from other members of our community who have been in a similar place before and they might have some additional suggestions for you based on their personal experiences. 

    I really hope that you will manage to talk to someone soon who knows that the next steps will be and that your husband will get to have a review soon.

    Best wishes, 

    Lucie, Cancer Chat Moderator