Skin cancer that has spread to brain and lymph nodes. Looking for advice about support.

Hello guys, my friend (29) has been diagnosed with skin cancer that has unfortunately spread to the brain, lymph nodes, and kidneys, apart from being prescribed codeine and steroids, he has no support from anyone, apart from family... what can be done about this? Can anyone point us in the right direction to get some professional advice please 

Thank you

  • Heya.

    This is my own advice in order to pass on. I happily recommend the website of Cancer Research UK. They have loads of good information and you can use this forum as well. MacMillan UK also have useful advice and information. Best wishes.

    On their website you can view information booklets then call or email the helpline. Here is the link to the website https://www.macmillan.org.uk. I hope this is a starting point for your friend. He may even want to read the skin cancer booklets. Aside from that, please tell us what tests have been performed. He needs an oncology referral pronto. 

  • Hi,

    Take a look at these melanoma charity websites as they cover advice, support and treatment information - 

    https://melanomafocus.org/

    https://melanomauk.org.uk/

    For financial/benefit support - Macmillan can guide him through this.

    For mental health/emotional support - if he has a Maggies centre local to him, they provide counselling & a place to pop in & chat with professionals https://www.maggies.org/

    Another resource to access for counselling is https://melanoma-me.org.uk/ who are based in the North East. They provide counselling face to face or by zoom if you don't live in the area.

    I hope this helps. Meanwhile, if you think he would also benefit by joining a peer support group (local or online), send me a friend request & I can provide you with information if there is one in his area.

    Thank you for looking out for him, you are a good friend,

    Angie (Stage 3 melanoma patient since 2009)

  • Can I also add that he should have a specialist cancer nurse that he can contact at any time. They provide information & are a conduit for any problems or questions he has for his oncologist in between appointments.

    With regards to treatment - no one can suggest what treatment is available without knowing what treatment he has had in the past and if those treatment options have been exhausted (tried & not worked). In which case pain killers and steroids may be given as palliative treatment. If you think he's unhappy about the care he's receiving & he wants a second opinion, he can arrange through his GP (sometimes Stage 4 patients see consultants at hospitals known for their expertise in treating a particular cancer). Has he looked into any Trials that may be available ? (Melanoma Focus have information on existing trials). I think you need to sit down with your friend & talk about what he may be seeking in the way of professional advice.

    I wish you both well.

  • Offline in reply to AngieT

    Thank you so much for your reply, I have forwarded this on to him and his family xx

  • Thank you, very much for your response, ive let him and his family know xx

  • I’m not sure if this is an option but consider a clinical trial. Cancer Research UK has an online sesrchable database or speak to a doctor. They can give you more details. And they are generally worth it.