Husband diagnosed with advanced oesophageal cancer.

My husband noticed a lump on his neck earlier this year After a couple of weeks went to gp who said come back if it's still there after another couple of weeks and did bloods. All the usual followed.. Biopsy. A 4 night stay in hospital for scans etc. Had a bronchoscopy as the Ct scan showed something 'concerning' in the lungs too.. Cue worry whike we waited for biopsy results. Lung and throat biopsies were clear but the outer lump on his neck showed markers for cancer... So they booked a pet scan. Got the results a couple of weeks later, cancer in the base of his tongue which has spread to his lymph nodes in his neck and under his ear. He has to have radiotherapy and chemotherapy starting likely after Christmas.. He's strong and fit and healthy and so positive (always is!!) and I'm absolutely petrified.. I've not been to any of his appointments with him as we have 2 young kids and no family close by to look after them. The radiotherapy doctor said the treatment is going to be awful. It's going to be a rough rough few months, we have a 9 and a 10 year old, our 10year old son is such an anxious kid who worries about little things so much so my fear about telling them is making me so anxious too. I'm hoping to get to the hospital with my husband one of his appointment dates to speak to the support team there for advice on how to tell the kids etc. Anyone have any advice on explaining to kids? Thanks in advance x

  • Hi Aociireland,

    Welcome to Cancer Chat. I'm very sorry to hear of your difficult situation, this sounds like so much to process and be dealing with, especially with less support around you with the family.

    It sounds like a good idea to try to get to one of the appointments if you can, and to speak to the support team.

    We have some information on our website about talking to children about cancer, so some of this may be helpful.

    Hopefully you'll also get some more replies to your post from others on the forum soon, particularly if anyone with similar experience sees it.

    Do keep reaching out to others for support as much as possible. This can include organisations such as Macmillan and Maggie's, who have various resources, information, helplines and also local Maggie's centres.

    We are also of course always here for support on the forum whenever you need it - even if it's just to write things down. From the homepage of the forum you can use the search bar at the top to find other relevant discussions and people to connect with, if you'd like to.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi Aociireland, I'm sorry to hear of your predicament. I have two adult children but 13 years ago I was diagnosed with cancer. I didn't want to tell them at  first. I didn't want them to worry but I had to tell work because I needed time off. This prompted me to tell my 26 year old twins. I told my daughter first then not long after, my son, who had started to worry due to me having an increase in doctors appointments. Although he was devastated at the news, I think a part of him was relieved to know what was going on. A couple of years later he said, "You should have told me straight away." All this seems like in the distant past now. I dont know if this will help at all. I just wanted to tell you my story. Good luck, God bless.