Seeking Advice: family member had prostate cancer 4 years ago and now it has returned as incurable bone cancer

Hi,  A family member had prostate cancer 4 years ago and now its returned as incurable bone cancer he is 56  He's had 3 radium injections so far and has been in agonising pain in 1 leg, cant walk and so has lost all his muscle mass.  Is this pain normal? He's a legal guardian of his niece and so is worried that if he reaches out for help with social services or the hospice they may take her away.  Family is doing what they can for him but he lives in the Isle of Man which makes it hard logistically for family to get over there with their jobs.  Parents are elderly buttering hard to help daily. He himself is only 56 and struggling with the diagnosis  we dont know his life expectancy as he wont ask. Does any know what help we could get for him and if it will impact on him being a guardian or who to ask.  She is his life so any threat of losing her is unimaginable.  I feel like we are wading through mud and i would love to know who I can talk to, to get the correct information to try help him and family. Thanks for reading.

  • Hello Shellbell101, 

    Thank you for coming here and sharing your story. I am so sorry your family member's prostate cancer has returned and he now has incurable bone cancer at 56. The agonising pain he is experiencing in his leg sounds awful and it's terrible that he can't walk and has lost all his muscle mass. He should not be in so much pain and I hope that he will get adequate pain relief. 

    His situation is so difficult with his worry that his niece might be taken away if he reaches out for help with social services and living in the Isle of Man he is isolated from his family and it's not easy logistically for them to get to him. We have information on our website which might give you some pointers as to who can help and on support that is available at home, GP and community nursing support being one of them. I think given his situation a first good point of contact would be the GP and his specialist team who are looking after him and one thing that needs to be sorted as a priority and that he needs advice on is the agonising pain in his leg and the fact he can no longer walk and it is affecting his quality of life. We have in-depth information on cancer and pain control and on treating cancer pain and talking to the GP about the pain he is in and how to manage it is very important to improve his wellbeing as it must be really hard for him and also for his niece to see him so poorly. 

    I would also suggest you give our cancer nurses a call on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm and they may have some good suggestions for you and be able to point you in the right direction. 

    It's very nice of you to want to help him and his family and it must be really hard for you to know too what support is available for him in the Isle of Man. I hope that you will hear from others here who will understand your family member's situation and that they will have some good advice for you based on their personal stories.  

    Best wishes, 

    Lucie, Cancer Chat Moderator