EHE sarcoma

My husband has been diagnosed with this super rare cancer looking for others to get more support. 

  • Hello Babsbon

    I'm sorry to hear that your husband has recently been diagnosed with EHE, which is a rare cancer. I hope that you're both being well supported by his hospital team. 

    There is some information about EHE (Epithelioid haemangioendothelioma) on the Sarcoma UK website. I've had a look through the forum and can't see that we've any other members who have recently mentioned living with this diagnosis. You might want to have a look at the EHE Rare Cancer Charity UK  website as well. They have an online patient support group that connects people from across the globe who are living with EHE. 

    If you'd like to talk with one of our nurses at any point, you're most welcome to give them a call. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I hope that you're able to connect with others who understand the challenges that living with a rare cancer diagnosis can bring. We're always here for you Babsbon. 

    Sending you both my best wishes, 
    Jenn
    Cancer Chat moderator