Hello MammaG

I am so sorry your dear Mum is suffering so much pain call her GP and stress she needs to be seen pain meds upped ....be very very firm and ask to be referred to the Palliative nurse they are tge pain specialists and can advise you and help mum be comfortable 

You could evven ring your hospice they will advise you who to liase with

Sending you strength to help your Mum and to keep going

RB

Hi MammaG, do you have anyone helping you care for your Mum at home at the moment? As that can make a difference to how well you can cope.

I cared for my Mum in her final days, supporting my 84 yr old Dad. We supposedly had carers coming in twice a day, but it was over the Christmas period and they said that they had no cover due to holidays & sickness, so basically my dad and I just had to cope. It was the hardest thing that I have ever had to do, she was on a syringe driver, but that wasnt keeping her pain free. The district nurses were coming out each day to refill it, but by the end of the day, I was having to ring the palliative out if hours doctors to give her top up pain relief, whilst at home, there is naturally a long wait, waiting for someone to be able to come out to give extra painkillers. I also had issues with the district nurses saying that mum was not distressed, when she clearly was.

My sister spent her last week being cared for in a hospice and whilst it is not always possible to relieve all pain immediately, as the nurses and doctors were there 24hrs a day, they were able to respond a lot quicker. I would say that she had a lot kinder and peaceful death than my Mum did.

I wish that my Mum had wanted to go into a hospice, however, both her and my Dad wanted her to die at home. I feel like I was so overwhelmed by having to try to be her carer and chasing doctors and nurses, that I missed out on that quality time with her in her final days, of just holding her hand and being her daughter.

Following our experience of Mum's final days, my Dad now says when his time comes, he wants to be in a hospice.

All you can do is see how your Mum feels, where she wants to end her days. It may be that she may be able to go into the hospice for a few days to get her pain under control and see if she likes it there? It would also give you a bit of respite from the worry for a few days.

I send you strength and good wishes to get through this difficult time.

Also, if she is in pain over the weekend, ring 111 and ask to have a call back from the local palliative team, they will get someone out to give extra pain relief.