Panic for nothing.

Hi

I'm probably panicking for nothing but I'm terrified, I was diagnosed with Barretts around 10 years ago and have had endoscopies every 2 years. Normally a few weeks later I get a letter confirming all ok, see you in 2 years. Today, this morning, I received a letter informing me I have to see a specialist as I have High Grade Dysplasia I don't want to turn to Google but being a Saturday I've just been staring into space going over and over in my head. Has anyone had this diagnosis and am I right to worry, any response will mean the world as I just want to get drunk right now. Thank you in advance x

  • Hi Jacsofbarry,

    Welcome to Cancer Chat. I'm sorry you haven't received a reply up to now - I hope you're getting on OK.

    We have information on our website about high grade dysplasia. Hopefully this will be helpful - as you say, it tends to be good not to do too much Googling.

    You are also welcome to give our nurses a call if you'd like to talk things through with someone. You can reach them on freephone 0808 800 4040 - Monday-Friday, 9-5.

    I hope it's not long to wait for your appointment.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Thank you so much for taking the time to reply Ben, I will have a look at the section you have kindly highlighted for me. I did manage to speak with my GP today but that was a complete waste of time as all he could tell  me was that my care is now being managed by the hospital, so guess it is just a waiting game now. I am a bit annoyed actually as for the 1st time in 10 years I had to cancel my scheduled 2 year appointment [which I did inform them of the day before]  as I had a  really bad bug and they then decided to take me off their list| Part of me was happy as I just kept thinking no more endoscopies but a voice in my head made me question and I complained to the unit and they decided to allow me to rebook it, I just worry now that another person in my situation might not want to challenge their hasty decision which doesn't bare thinking about. Thanks again.