Metastatic lung cancer

Hello it would be helpful to discuss with individuals who have metastic lung cancer. My husband is palliative with a diagnosis of 2-3 years. He is on immunotherapy and been on this journey for 2 months. He has experienced some difficult symptoms and it has made him question if the treatment will be worth keeping going on. Has anyone out there been on the treatment for a year or more? Has anyone advise on ways to get through the treatments. Excercises which help symptoms? Do anyone know of some treatments which are on clinical trial ? Any advice would be helpful. Thanks in advance. Bonner

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  • My husband was diagnosed purely by chance through a routine chest x ray. No symptoms. Next thing hrs told stage 4 lung cancer spread to lower spine 2 bone mets & a 6mm brain met. My husbands on the STRIKE trial due to type of cancer & tiny brain met.

    Hes had 2 keytruda immunotherapies, one cyberknife radiotherapy to brain, one radiotherapy to bone mets & started Zometa bone treatment 2 weeks ago to help bone pain & strengthen bones & went through hell with painful side effects & ended up on oramorph.

    He seemed ok with the first immunothetapy keytruda no side effects, but after the 2nd & the radiotherapy & the zometa, hrs changed. Nauseas fatigued no interest in life or food. Doesnt want to go out. His weights dropped from 15st 2lbs to 13st 12lbs.

    I dont know if all the side affects are treatment related or mentally/anxiety related. He takes anti nausea meds which he says dont work. My husband seems to have given up with life. He started off ok with treatment, but something as changed in him & I dont know what that is, as he gets annoyed with me if I question him. 

    We've never asked the question of how long as we dont want to know. But if hevkeeps going the way he is now, he'll just wither away. 

    Theres loads of people I've spoken to on various sites that have had immunotherapy for years & seem to be living normal lives. Sadly my husband will never come to terms with cancer

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  • My husband was diagnosed purely by chance through a routine chest x ray. No symptoms. Next thing hrs told stage 4 lung cancer spread to lower spine 2 bone mets & a 6mm brain met. My husbands on the STRIKE trial due to type of cancer & tiny brain met.

    Hes had 2 keytruda immunotherapies, one cyberknife radiotherapy to brain, one radiotherapy to bone mets & started Zometa bone treatment 2 weeks ago to help bone pain & strengthen bones & went through hell with painful side effects & ended up on oramorph.

    He seemed ok with the first immunothetapy keytruda no side effects, but after the 2nd & the radiotherapy & the zometa, hrs changed. Nauseas fatigued no interest in life or food. Doesnt want to go out. His weights dropped from 15st 2lbs to 13st 12lbs.

    I dont know if all the side affects are treatment related or mentally/anxiety related. He takes anti nausea meds which he says dont work. My husband seems to have given up with life. He started off ok with treatment, but something as changed in him & I dont know what that is, as he gets annoyed with me if I question him. 

    We've never asked the question of how long as we dont want to know. But if hevkeeps going the way he is now, he'll just wither away. 

    Theres loads of people I've spoken to on various sites that have had immunotherapy for years & seem to be living normal lives. Sadly my husband will never come to terms with cancer

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