A Complex Marriage With My Terminally Ill Husband

This is a difficult and challenging post to write. My husband and I have been together for 21 years and have been in each other’s lives for 30 years. We once had an amazing relationship and despite the ups and downs of life, we have remained loyal to each other and loved each other very much. However, our marriage became profoundly dysfunctional many years ago and all forms of tenderness and intimacy stopped. We became like lodgers living together and our combined purpose was solely based on raising and nurturing our son, who is now 19-years old.

An unexpected bombshell explosion rocked our small family last year with a sudden cancer diagnosis that was terminal. My husband bravely endured six months of chemotherapy and immunotherapy that sadly didn’t work. We were informed a few weeks ago that he would be triaged to palliative care at our local hospice with a prognosis of 3-6 months of remaining life left. My husband’s health has ironically improved since treatment stopped. He retained all of his hair, and despite losing a lot of body weight, he is still mobile and looks incredibly well. He is currently on no medication apart from paracetamol to control low levels of pain and discomfort. 

Throughout our years together, a growing hostility and rage emerged between us. This was compounded by many of my unknown disabilities (at that time) that have more recently culminated in several neurodevelopmental and mental health disorders. Despite my challenges, I remained working throughout our marriage in a variety of demanding and stressful executive roles as the primary breadwinner, whilst my husband retained the primary role of caregiver for our beautiful son. I stopped working last autumn at the time of my husband’s diagnosis to focus on caring for him and to support our beloved son.

I am reaching out in desperation because of the hugely emotional and conflicted feelings that I have about my husband. I am already deeply immersed in anticipatory grief and my heart is truly shattered at his impending death and that our young son will be without his hero Dad. My husband has exhibited verbal aggression and anger towards me for the majority of our marriage, but it has now reached levels that I can no longer bear. We are unable to be in the same room together at home, nor can we stand to be in any situation where we have to occupy the same space. I genuinely love my husband and I know that he feels the same about me. Unfortunately, the years we have spent together have become so toxic and my mental health is now in real jeopardy. We had our first appointment at the hospice a couple of weeks ago, and the nurse is referring me to a Psychologist as she could clearly see my utter despair and distress. I want to run away and cannot cope for another day in such a hostile and toxic environment. 

My husband’s relatives, including adult children from previous marriages, live a long distance from us, and they are planning to visit him soon at our home. I know that some of his relatives don’t particularly like me, and I haven’t seen some of them for many years. It all feels like additional trauma during a time when I am not able to cope. I don’t know what to do and feel indescribably anxious, depressed, and traumatised. I am also conscious that I need to do the very best that I can to support my husband and our son, but his anger (my husband) towards me is now starting to make me hate and resent him - even though paradoxically I still love him!

Any advice from anyone who has lived through these complicated feelings would be appreciated. 

  • Hi Sunflower101

    Thank you, for sharing and in so much detail.  To be honest I think you are doing amazing. That might seem like an odd thing to say, but l am encouraged by you and would also like to encouraged you too. You have been through a lot and are still going through a lot. I would not even try to say it won't get worse, but you have made it this far by taking one day at a time and l believe you will make it to the end. Your husband needs you more than ever now, even though he doesn't realise it, and your son needs you. Be strong for yourself and for them. Take all the help and support you can get and most of all love yourself. 

    My situation is quite different, my wife has had cervical cancer since 2020 and this year it has got progressively worse and she has lost a lot of weight. Encouraging her to eat seems to be my biggest challenge as well as watching and trying to help her deal with the pain. We have also been together for 30 years, with many ups and downs. Though we still love each other very much. I am 62 and my wife is 63 both retired early. 

    Somewhere within all that bitterness I am sure your husband still loves you. The only advice l can give you as he nears the end of his life is to remember the good times the reasons why you married him and know that he is not himself now. I know you will do the best you can for him. There are many that would have run away by now, but you are not one of them. God bless and strengthen you. 

  • Hi Sunflower101,

    I'm so sorry to hear that you're experiencing these difficulties and the challenging behaviour from your husband. This sounds like a lot to be dealing with and I can understand you are struggling.

    It's good to hear that you are being referred to a Psychologist. In addition to this, it could be worthwhile following up with your GP, who may be able to assist with referrals to talking therapies, or potentially prescribe medication to assist with anxiety and depression.

    You may also find it useful to reach out to Mind and/or Samaritans, who both have helplines. The Mind support line is open Mon-Fri, 9am-6pm. The Samaritans helpline is 116 123 and is open 24/7.

    Do keep us posted with how you're getting on whenever you can.

    Best wishes,

    Ben
    Cancer Chat Moderator